Men always want to find a solution. He was probably scared, frustrated, and felt useless. It is hard for our husbands to watch us decline and feel helpless. My husband gets angry and frustrated at times, and I know it isn't at me, it is at the MS. They really don't mean to be dismissive or uncaring. I still do pilates and as I progress it becomes more difficult to maintain and develop strength. But you can do little things with your arms. It may or may not help in those situations. I don't think I would take it personally. I would acknowledge that it is hard for your husband and thank him for sticking by you. I am sorry you fell. I have too and it is scary. I hope you did not hurt yourself.

Hi, hope you are better today, I think upper body strength can't get you up, no matter how strong one is, I don't know, but I always have my cell phone on me, no matter how close I'm moving , even in the room. Sometimes my daughter is in her room and I'm in mine, I've had to call or text her to help me, and the others way around. Men react that way when they can't fix it, so concentrate on getting better.
Alma

Thank you for your posts my friends. I know that men react this way, but it still acts like a crushing blow! I do upper body strength exercises but that did not help when my lower half would not work. My husband doesn't want another cell phone bill. I will ask my grown daughters for a disposable phone for emergencies. My birthday is next month so they hopefully will oblige.

Hi, I don't know what's called but there is a phone provided or subsidize by gov, that's free. Maybe somebody here knows about it. Also a whistle can do,, and can hang like a necklace.

Alma

Hi sorry for your troubles.
I found it hard to exercise my legs when I could still walk.
My legs would go to sleep after 10 min's & I would fall.
I found Areo Pilates table was great.
You lay down on it or sit on it to exercise.
When doing your legs you are laying down so you can not fall.
As for the phone we got a portable phone system. It costs 30$-60$ (well here in Canada) We got the system with 3 phone so one was always charged. It is a one time cost. There was a clip on them. I carried one at all times, even in the bathroom. I kept one in the charger beside my bed & beside my chair in the living room. Even though I lived in an apartment building on the third floor I found that the range of the phone worked when I went into the laundry room on the main floor. If you live in a house it should work in the yard.

Hope this helps

Men are a totally different breed altogether. I cannot offer any help with your hubby, just give him understanding and love.

I'm sorry you fell. Glad to hear there was no real damage. Maybe it is time to think about a walk aide like a cane or something to help stabilize you? I hope you contacted your neuro about this?

I'm sorry I can't agree with some of the others here. Your husband was angry ???? What the hell! Exercise, how the hell are we supposed to do that with this disease. To bad he can't trade bodys with you for a few days and see just what fun it is to live like we do. aaaarg, sorry I'm really pissed to hear shit like this. I think he needs to grow the hell up and consider someone other than himself.

Thank you for your kind replies! I try to walk up and down the stairs and do leg lifts. I don't want to lose all muscle mass in my legs! I have a cane, a walker, and a wheelchair that I use depending on how I am feeling.

I just don't think people who don't have MS can not EVER understand what it feels like to have this horrible disease.

Hi, yes nobody can understand, even if they read a book. My mother read ms for dummies, and understands a lot, and still doesn't know my day by day, I understand so I don't get mad, I just love her, love that she made the effort by reading. My daugther has ms like me, and I don't understand what she is feeling sometimes.
Alma

Im sorry that you took such a fall & were stuck too & couldn't get help.
All of the suggestions others have given you are good. Even a personal alarm that sets something off in the house or similar, you need to find something that makes noise so whoever is home will hear you & come to help.

As for hubby's reaction, I would say that would more from fear than anything & feeling useless. I know my hubby gets mad at some things with me then later says "sorry" but its from a feeling of useless. If he is supportive in other ways I guess it is just an outpouring of his frustration too. Maybe at a quieter time you can let him know that you were hurt when he yelled at you & did he realise this (or similar).
Most important take care of yourself

i have something that i want to share, kinda in this line...my husband of 35 years is still in total denial about my progressive ms. he has always said you "need to walk more to build yourself up"...right
i do not walk more because I CAN'T WALK. of course i would walk more if I COULD WALK.
does any one follow what i am saying? my legs are like carrying two cement boulders around 24/7, among other things.
naturally i would never wish ms on anyone, but in your head, walk in my shoes...
yes exercise is still important, anything you can do helps your muscles try to stay in check. and having a phone is important, just in case. many hugs, connie

Coolconn13- are you sure we are not married to the same man? My husband says the same thing to me.

Everyone was great with their words of support and encouragement! That's why I continue to come here!

THANK YOU EVERYONE!!!