Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I'm posting on every brain/ neurology support group in DS cuz I'm very scared
For a week now I've been having what I think are a little more than dizzy spells...its not a headache..like I don't feel pain when it happens but I get this pressure like feeling in my eyes where they feel like they go crossed ...and my vision unfocuses and it looks like when u make urself go cross eyed. It gets worse as time passes...like before it was just my eyes but now when the eye thing happens my arms hands and feet don't work right ..like its hard to grasp things and it's harder to move my legs forward or back to walk straight ...the scariest new thing now is my ability to speak when it happens..my speach slurs and I can't talk correctly ....this is freaking me out sooooo muchh! Idk what to do...my dad quit his job so no insurance foe me and my bro and thar means no doctor...last night my mom said to stop being dramatic ...wtf....why wud I make this up? I don't wanna feel like this cuz I'm scared now to talk to people cuz it can happen anytime and I'm scared to drive too ...idk why this is happening :-(
I should probably see a neurologist ..cuz a few summers ago one day I woke up and felt tingly and by the end of the week my whole right side was numb...weird shit always happens to me
I wish I knew someone who went thru this so I cud know what it is
For a week now I've been having what I think are a little more than dizzy spells...its not a headache..like I don't feel pain when it happens but I get this pressure like feeling in my eyes where they feel like they go crossed ...and my vision unfocuses and it looks like when u make urself go cross eyed. It gets worse as time passes...like before it was just my eyes but now when the eye thing happens my arms hands and feet don't work right ..like its hard to grasp things and it's harder to move my legs forward or back to walk straight ...the scariest new thing now is my ability to speak when it happens..my speach slurs and I can't talk correctly ....this is freaking me out sooooo muchh! Idk what to do...my dad quit his job so no insurance foe me and my bro and thar means no doctor...last night my mom said to stop being dramatic ...wtf....why wud I make this up? I don't wanna feel like this cuz I'm scared now to talk to people cuz it can happen anytime and I'm scared to drive too ...idk why this is happening :-(
I should probably see a neurologist ..cuz a few summers ago one day I woke up and felt tingly and by the end of the week my whole right side was numb...weird shit always happens to me
I wish I knew someone who went thru this so I cud know what it is
Some of those symptoms could be MS, but they could also be many other things. So many neurological and autoimmune diseases are so similar to MS that it is impossible to tell them apart without careful diagnostic testing. For example, Lyme, mimics MS almost exactly but shows differently in tests and is treated completely differently.
Be careful not to try to compare your symptoms to anyone elses to figure out a dx - only a doctor should dx you. If you try to self-diagnose you could come to an inaccurate conclusion which could make it much harder in the long run to find the true issue.
If you don't have insurance, many hosptials offer free care for sudden onset issues such as this, I would recommend looking into your options. Also, as far as your parents go, I would sit them down and as calmly and carefully as possible explain further how you are feeling. Don't use your emotions if you can help it - those will just further convince them it's dramatics.
My mom says to go to the doctor anyways but she said that last time I had a whole series of medical issues and then was like oh ur dad needs to pay for thar and now more than 6 months later the bills aren't paid and that upsets me so much and I don't wanna make more bills..u know...but she told me that she doesn't wanna hear from me anymore cuz I wont go to the doctor ...I'm soo scared like this is happening more and for longer
I have this throat infection too so I think they might have something to do with each other..idk...but thank u for ur advice ladies
If it were me I would set up an appointment with a neurologist as soon as possible to get an MRI and spinal tap, and if it is MS start a therapy as soon as possible.
If your parents are unable to afford medical bills there are programs that are able to assist. I would put your health first and make it a priority!
good luck!
Alma
They would not forgive themselves if you were in an accident or something else happened because you didn't feel that you could tell them. I know what it feels like, all the people here do when people treat you like your being dramatic.
Obviously something needs to be looked at carefully. Everything will be fine, you just need to find out what your dealing with. I agree that there could be many explainations for these symptoms, and it will take someone who is trained to find out what it is.
I was curious, what else happens with your eyes, blurry, double, anything else? When do you notice these things the most? Just wondering. I think you are very smart not to drive. I know that stinks, but it could be a risky thing to do right now. Hope you find out soon. love, carla
Carla: with my eyes its double vision. it happens randomly even when im trying to sleep but when i work out (i do the insanity workout) symptoms take a break....but i notice it when im walking and talking...and when people are talking too loud i get confused.
alma: i was never dx with ms so i dont think they would help me. but im gonna try to apply to medicaid, but since im only 19 dont have any dependants and depend off my mom i also dont think they will help me either
thank u guys sooo muchh for ur support...ill let you know
Alma
and then i told her about my physical issues and she said that it sounds strange and she wrote me a script for an mri w/ contrast (idk what that means) and then...she asked me if i thought this was psychological...that upset me cuz this isnt the first time i get dismessed cuz docs think it psychological...one time the whole right side of my body went numb..couldnt move it and the er docs were like well everything seems normal maybe its stress...ughh
Alma
Alma