Best thing to do is call National MS Society and get a listing of MS specialits in you area. These are classic signs but truthfully it can be anything sunshine. Hang in there!

Wasn't done with that...cursor moved and I hit enter. :(

Anyhow I am totally out of commission at times due to this weird myriad of symptoms. I was led to the possibility of MS by 2 main things I found. MS seems to be the only thing I found that describes my weird vibrating feeling while laying in bed. And the fact that when I was pregnant I went into total remission from whatever is plaguing me. Shortly have pregnancies symptoms would come back.

Here's my question...how many of you had a hard time getting diagnosed? Any of you have normal MRI first time around and then abnormal later? I have read that it can take some time for MS lesions to show on MRI. Also, they have never done MRI of my spine just my brain. I have read that MS lesions can be in brain or spine. Anyone have any thoughts?

I am so desperate for answers. My symptoms are sooooo frightening at times and I honestly feel like i'm dying. But no one can tell me what is wrong. Thyroid tests are all normal, no diabetes, complete heart work-up all normal. Tested for seizure activity...normal EEG and sleep study. HELP! They suspected MS but said no since my MRI was "normal". Also, the MRI was without contrast. Aren't they supposed to be with contrast to detect MS lesions?

Thank you all for bearing with me. Any info you could give on getting dx and getting MS ruled in or out definitevly would be great.

Melissa

Hi,
Maybe you need to see another doctor? I saw several before I found the right one. I think this day and age doctors are so afraid of being sued, they are afraid of a misdiagnose.
I'd try for a second opinion, if you can.
Good luck
Hugs

these are all familiar symptoms. are you journaling them? really, write them down..each and every one, each and every time! take this with you to your dr, get another dr if you have to. you need answers...are there any support groups for ms around there? or the ms society itself. there are people there that can assist you in finding the right dr. answere questions..good luck!

I just read on the national ms society page that there is no single test for MS. I was lead to believe that the MRI was the test for MS. ????? I will look for an MS specialist. TY for the info. Did anyone else have normal MRI and diagnosis with MS anyways?

I did do some journaling off and on. In fact in desperation I even put together a website that keeps some info. But I haven't updated it. www.myrecords.info

My symptoms are all soooooooo strange and sooooooo varied that no one seems to know what to make of it. The thought maybe I even had lupus but ANA was normal. Was told for years I had carcinoid, but recently was disproven. The last 7-8 years has been hell. If this did turn out to be MS are there even and treatments to help relieve the symptoms? Is there anything to be gained by actually being diagnosed? Or will it just give me a label for all the strange stuff going on in my body?

there are some drugs to relieve some of your syptoms. the key to managing this disease is to keep it from progressing. this is very important, which is why it is neccessary to find the right doctor as soon as you can. it will give you some control of your life as well, and this will give you strength and peace......

It took almost a year for my diagnosis. I saw over 20 doctors, some of them several times. I saw primary care, allergists, dermatologists, Internists,audiologist, endocrinologists, gynocologists, and 3 neurologists.
(Probably a psychologist or two without them telling me)
I had gallons of blood work, several MRIs, CT scan, Xrays, and the eye test that I can't recall the name of.
I was diagnosed with Menieres disease, carpal tunnel, a possible brain tumour.....
I KNEW it was MS but it took the 3rd neurologist and a lumbar puncture to prove it.

It is not unusual to have difficulty diagnosing.

you are definitely not alone on this one, here is a good site with some examples of that.
http://www.msakc.org/Articles/MSFibroLupus.htm?menu=2-8&article=Articles/MSFibroLupus.asp

you are definitely not alone on this one, here is a good site with some examples of that.
http://www.msakc.org/Articles/MSFibroLupus.htm?menu=2-8&article=Articles/MSFibroLupus.asp