Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Good luck to you!
http://www.cdfund.org/Patient/patient1.aspx
http://www.needymeds.org/copay_diseases.taf?_function=summary&disease_eng=Multiple%20Sclerosis
http://www.needymeds.org/resourcepages/ms.shtml
Gotta love insurance. They charge you a ton, then when you get sick, they jack up your rates. I know they do this because they are trying to:
a. Shift more of the cost onto the sick patient, and...
b. Slowly force us off their rolls by making it too expensive.
Insurance is such a nightmare, yet a necessary evil. My husband and I both have private pay individual plans because we're both self employed. It costs more than the payment on our 3000 square foot house. I wish the public option would be an OPTION!
Definitely call MS Lifelines and your local chapter of NMSS. You should also probably call your doctor and let them know what happened. They might have some knowledge about help as well.
"FOR PROFIT"
Short, sweet, and so very true.
She went on to say that the most interestsing research to her is that that many are doing on their own, which is looking for the connections in what works in the meds that are being developed, and what insight that gives to the ways and whys of MS. She also reinterated that she is very appreciative of her patients that are out here everyday living with MS and looking for answers. She said that the people living with MS have to get active and make a cure as much of a patient driven issue as a cure for each problem that comes up. As an example, the oral meds are something market research demanded and suggested would make googobs of money. She suggested that every survey we hear of, we respond that our number one concern is a CURE, not something for better balance. It will not get it done, but it will also not give them justification to blow lots of dollars to develope someting the MS community is "clamoring for."