Multiple Sclerosis (MS) Support Group

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ricanfemale30 05/08/2011

Its 3am n I can't sleep..bad case of insomnia...I've battled insomnia for years but damn Ms leave me alone!!!!...daily..DAILY every 2-3am I wake up n its take an hour or two to get back to sleep..but as we all know damn that pain...I'm so sick of it I wanna sleep!! My back hurts I can't describe the pain is so dull but achy as all hell..my legs too ugghh..and does this happen to anyone..its hard to describe but I find that I work harder to breathe when I have severe back pain its like it radiates to the muscles of my chest...needless to say I believe I brought this upon my self..this morning I walked the dog (it was ssoooo nice out!) I got caught up in training n walking the dog it was 45min later n I'm poopin out..plus mix that with food shopping a big ass cart with my mom...next time hubby is going with me...I try to do what I can I didn't think I'd feel like ass the rest of the day..uughh just had to vent..ooo I forgot to mention the back pain makes me nauseous too..I just wanna sleep...pain free..I hate having to knocked myself out with meds just to get my relief and sleep...insomnia anyone?!

lchoppel 05/08/2011

Hi Rican, I'm right here at 3:58 am with you. I awoke somewhere around 2:15 am myself. I do so every night and this is when I do some good IMing on DS with friends or strangers. But I can't sleep either, and I take a boat load of sleep medications to go to sleep, only to awaken every night around 2, and not being able to go to sleep for a couple of hours. I awoke also due to my pain tonight, so the first thing I did was take pain meds. Boy, it seems like I'm always taking pills to combat symptoms of this shitty disease!

samona 05/08/2011

I have noticed that I rattle when I move now! So many pills ; )

deleted_user 05/08/2011

Sorry to hear. I have been an insomniac for years and it got worse with the MS. I have slept through the night almost consistently for 5 weeks now. This is what I am doing...I got off all caffeine, don't drink alcohol, stop eating early, and make sure I have had enough water early in the day. If the sleep gets shaky, I take Tylenol PM for a couple of days to get my body and mind back into the habit of sleeping. Everyone is different especially with this disease, but I hope some of this helps. The worst part of insomnia for me is all of the thoughts that pass through the mind in the middle of the night as my legs are having spasms. Too scary. Then all of my stress gets out of control and all of my symptoms worsen. Gotta love this bloody disease....Good luck..

ricanfemale30 05/08/2011

I thought I was going nuts cuz I've had insomnia for years but this past year man wtf...I keep all my pills on my nite stand cuz I know imma need them..I don't drink coffee or alcohol..so wtf idk..I'm on the site they my phone so I do t think I cant IM people..boring I stare at my ceiling n hope to fall asleep..oh I forgot to mention that my bf snores ssoooo loud I wear earplugs to bed EVERY NITE ughhh so u can imagine the frustration ..

deleted_user 05/08/2011

Can't you "burn" inside ur crib? I smoke a fattie of kush just b4 I hit the sack.

ezone 05/08/2011

Insomnia kicked in with my MS. I take a sleeping pill and zantaflex and a half of baclofen and that seems to work. I can't sleep without them, but I am not in pain. Just have insomnia since the MS. And forget about taking a nap, haven't done that either since the MS kicked in.

I wake up once around 5-6am and take a baclofen and and half of zantaflex and that works to get me to go back to sleep.

I am sorry that nothing is working for you. What about neurotonin? I thought that drug makes people sleepy and helps their pain? Just wondering.

deleted_user 05/08/2011

Never has insomnia my whole life. I have been able to go to sleep with no trouble ever!

Now, THE PAIN!!! Ugh... It is keeping my up and waking me in the middle of the night. I cant find a med combo that works. I take Gabbapentin and Aleve but not good enough. Last night I took an Ativan to put me out and stop the stressing. I was trying to talk myself into the fact that this is just a relapse faze and it will wax and wane... right???

GOod God!!! Does anyone have any med combo suggestions? It is that dull ache in my lower back and legs. I feel like I need to stretch, but no stretching helps. I was at thegym this week and did more lunges and squats then normal and I think I spurred this flare up with that activity.

I just want to SLEEEEEEEP

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