Was it hot in the garage? You'll always have to be careful about exerting yourself in the heat.

well darling, you are with us...in the right place! i could'nt tell by your profile when your dx was but i see like me, you are new to ds.

i know just how you feel. there is so much stuff to be done and i know i can't do it.

about the time i get used to one symtom, another "rears it's ugly head".

it is very hot right now. i wouldn't even try to accomplish anything..it's not worth the physical and emotional wear and tear.

limitations...that's okay

cut youself some slack!!!!! :)

I have not yet be dx yet. I am still in the "probable ms" category per my family doc and neurologist. They referred me to OSU MS docs but they have not yet schedule my appt. :(

Still waiting.

Ahhh Melissa,

I am well aware of the range of emotional distress you are going through; I have been there and continue the struggle, it is getting easier with time & knowledge.

I was sick and tired of hearing about the power of a positive attitude because it never worked for me until I was 100% fed up with this crap. I now search for that one positive and cling to it no matter how numerous or daunting the negatives may be. To use a sports analogy, I bench the negatives substituting them with that one positive. I give that positive more power than the negative (whether real or not-its a mind game, I can elaborate if you wish; at a glance this doesnt make sense); once you make up your mind it is easy to accomplish but, you must be ready. You expend no energy what so ever to be in a good mood, in fact being in a good mood revitalizes your mind and body giving you that much needed energy.

Being angry takes an immense amount of effort and zaps you of energy thus triggering those MS symptoms. So....indirectly and unknowingly bring many of these symptoms onto ourselves. I know I did. This new way of thinking only guards against the mental problems that MS can hit you with but, in many ways, is a tool for indirectly defending yourself against the physical problems too! I replaced the term problem and call them challenges now...this may sound pointless to many people but it works for me and that is what you must find. Something that works for you. This is a tool that can work and make your life yours again.

MS hits all of us in different ways, at different ranges of severity and pain levels, and at different times; one med works where others dont or where the side effects are intolerable. There is no one size fits all med, symptom relief, or life style which works for the physical challenges. However there is a single one size fits all defense to battle the mental torment MS bestows on us and that is ATTITUDE. A positive attitude is so important for us. We are stuck with the physical challenges but we do have power over our mind even when MS effects our mental abilities like it has mine.

I spent to much time dwelling on the really shitty things MS brought into my life...I lost everything (House, boat, retirement funds, furniture, most everything of tangible valve and a few intangibles such as an eye and a couple friends) due to this stuff except for my close friends and family which are the most important things in life and I do not take them for granted any longer, not that I ever really did but I never realized their true value. There was much to be livid over for having been struck with MS and its consequences it would have in my life.
I may be stuck with MS and TN (the worst of MSs effects for me) but I have my family, friends, and humor. Ya know, it didnt used to be so but, I feel blessed just to have those three things.

You can try that tool I spoke of to deal with this Shit (you can say it or were you going to say Shoot?) that MS has given you; there isnt a better or more poignant a term to use. Its description is clear and concise, perfect in every way to describe MS.

Your symptom is peculiar; I do not recall ever hearing the shaking symptom before except for meds being a cause or side effect. I could speculate all day but, that would serve no purpose for you. MS does trigger an intense fatigue in me; at times I feel like I just ran the 440 which causes shaking at times. Fatigue is a 24/7 reality for me and can in fact get worse if I over exert myself which can render me bedridden for days; it really sucks to put it mildly. I am just careful now. I will say that fatigue has come in handy at times when I really dont want to go somewhere but, fatigue has taken more from me than it has given in terms of ditching some activity. The trade off is not worth it. Does your shaking include fatigue during or after this happens? Just a question of curiosity, I do not have a solution; wish I did for you. Your doctors must 1st determine if in fact you have MS. Does your MRI show a bunch of moth ball looking critters in the picture? Do you have other peculiarities or sensations, no matter how insignificant they may appear, that is different in your coordination or sensitivity? I certainly hope you do no have MS.

If you would like to actually get a chance to speak or ask me questions you know how to find me. I have been at battle for around 9 years and on the front line for about 4 though I still have much to learn.

I truly hope your not coming down with MS and that you find your peace with what ever it may turn out to be. Lets pray nothing with devastating consequences!!!

Take Care,
Mike

I think, when you realize you have no choice but to deal with it... Your attitude starts to change and you start to feel more like the master.. Of course, none of us has mastered this, especially not me.. I'm a newbie, too.. ;o) I hope you continue to post like this, because many of us are helped by it.
Take care! Clare

i understand completely. i have the shakes alot, drives me crazy. doing just about anything gives them to ya too. i was sitting in a theater and first my back was killing me then i got light headed and then started the shakes. i thought i was going to have a panic attack. i am not used to it and i don't know how to either. sometimes i joke about it but there are days you just want to go to your room and bawl like a baby. sorry, i wish i had the answer.

HI MELISA,
FIRST OF ALL THE NOT KNOWING YOUR DX YET CAN
BE VERY STRESSFUL.YOUR MIND WANDERS TO ALL TYPES OF THING'S.
IT SOUND'S LIKE TREMOR'S TO ME.WHEN MY MUSCLES
OR IF I'M REALLY EXHAUSTED THEY START.WHAT I
HAVE TO DO IS STOP AND JUST REST.THEY'RE NOT
AS BAD AS THEY USE TO BE.
YOU WILL SEE SOME SYMPTOM'S MAY SHOW UP FOR
A WHILE AND THAN SOMETHING ELSE WILL START.
I HAVE NO STAMINA.I'M SO EXHAUSTED ALL THE
TIME.SO I CAN SEE WHY YOU MIGHT BE GETTING
THE SHAKES.KEY IS TO LEARN YOUR LIMITATION'S
AND THAT CAN GET BETTER TOO.THE WEATHER HAS
A GREAT DEAL TO DO WITH IT.

ONE TIP IS TO NOT OVER HEAT YOURSELF AND
ANOTHER TAKE A COOLER SHOWER RATHER THAT
WARMER.
I HOPED I HELPED A LITTLE.I'VE HAD IT FOR
16 YRS.AND THERE'S BEEN DIFFERENT CHANGES.SOMETHING DO GET BETTER AND SOME DON'T.

I REALLY TRY TO BE OPTOMISTIC AND KEEP MY
SENSE OF HUMOR.RIGHT NOW I'M IN A REAL RUT
AND DON'T FEEL LIKE DOING ANYTHING.WHICH I'M
PREETY SURE IS FROM THE STRESS.

I HOPE YOUR DR.IS GOOD AND HE CAN HELP YOU.LOADS OF LUCK.I KNOW IT'S FRUSTRATING.TRY
TO DEAL WITH EACH DAY AS IT COMES AND DON'T BE SO HARD ON YOURSELF. HUG'S

Melissa...even when people on here say "they just deal".....grin...you will after awhile look at those words and think...bullshit....rofl...not one of us...just deals...something at one point always pops up and throws us for a loop hon...wether or not we have had this crap for many years or for a few....none of us knows what is around the cornor hon...it is like christmas..grin..a constant surprise..lol...
two weeks ago i cleaned the whole house..well almost the whole house...no problem...this weekend...i sorted boxes in the basement and the storage unit..and feel like someone has tried to kill me...smoked more pot than i thought was available just to make it through..grin..and still had to make a dr.s appt. for wednesday and physio appt.s all week...and have an emergency ms clinic appt. on the 12th...rofl...
none of us just deal hon....we push through...grin...
personally i dont just deal...i smoke...(pot) i take my meds...and i go to bed every nite..hoping like hell that when i open my eyes in the morning that i will be able to move around a bit better when i wake up..smile....
welcome to our club...now dont you wish you had signed up for lawn bowling instead...grin...lol

hugs
heather