Multiple Sclerosis (MS) Support Group

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Buffalo study with stem cells

melaniemic
melaniemic
It really has me aggravated that the press announced the UB will be doing research studies with stem cells for MS. Phase I won't begin until 2016. Why tease us all by announcing this now?? Living in Buffalo, of course I want to know about this. They will do the study on progressive patienrs, not rrms. But why announce it now??????
Anne8
Anne8
I just read up on it. They have just gotten $12 million approved for it, that's why they are announcing it. And the study is on secondary progressive, to be specific.
I understand that it might seem frustrating that studies are not immediately undertaken, but apparently they also have to refine the technique before they start testing people. It is probably to minimize unnecessary death etc.
I am sure some of us who have had this disease much longer, must welcome any and all possible news. I know I do!
Orsova
Orsova
I live in Australia so my first reaction to this post's heading was 'OMG stem cells from Buffalos - whatever next?!'

But when I realised what the topic was about I think that all research will get the subject a little more advanced. Bit by bit... the goal may one day be reached.

In Australia there is an international study going on regarding the effects of Vit D. Now many who take it can atest to its benefits - but scientists want more than anecdotal evidence, so the studies must go on.
lorrieonline
lorrieonline
I used to live in that area too. Still have family there. I'm pretty sure that UB has been having trials already so this may not be a first. I've heard about this before. Perhaps if you stay on top of it, you'll find other trials information? Best of luck with that. Reminds me that someone in a clinic I attended had mentioned he thought being stretched/massage was helping his circulation, helping him detox metals from his brain. When he talked about how far he had come with the stretching, I was convinced that a lot of things can be helpful. :)
mjideas
mjideas
Because it is a lengthy process to design, get approval, recruit and begin this kind of study There is nothing for progressive MS. Tons for RRMS. Some researchers are targeting progressive because many may end up there and it is a bad place to be.

Maybe you should think about that. i used to get frustrated too. Then I ended up on my back. can't sit up and periodically have to call the EMT's for help when mine can't make it.

Be happy they are looking ahead,

Melanie
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