Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I thought this assessment of the results was well done. It seems CCSVI is not found in 100% of patients with MS. But as the article points out, the high prevalence may be a useful piece to the MS puzzle or may indicate mis diagnosis. So many things can look like MS- sticky blood for example. Maybe it can help sort out who truly has MS which would make for truer results on studies and therapies. The areticle has a link to the actual study as well. http://www.wheelchairkamikaze.com/2010/02/ccsvi-already-success.html
http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/9054890-italian-doctor-heightens-interest/page-3
Here are a few of my comments:
1.) Dr. Zamboni is trying to investigate MS for his wife who has the disease. So his interests are to help alleviate the symptoms if not to get rid of the disease. His motives are not to make huge dollars or fame. He wants to find the truth.
2.) This leads to the second part which is, if you have read anything from him, he does not tote this as a cure.
3.) I am GLAD someone is willing to look outside the box and follow other symptoms to look at a bigger picture of the disease. Kudos to him for his investigative work on this topic.
4.) At this time we are NOT looking at this procedure as more data needs to be presented. I will be following this research tho.
However, I think there is a very important question that is not being asked on the boards. WHY is there vaso constriction???
My pondering on this question lead me to the following thoughts:
-- A metabolism issue where not enough insulin means sugar can NOT go from blood into cells called Diabetes causes CARDIOVASCULAR problems including vaso constriction.
So people you know what I have been saying.... I think MS is a metabolism issue (NOT due to insulin deficiency) that could possibly be causing vaso-constriction.
Just a thought...so far my husband's blood work is confirming my suspicions ( : We are giving him the things he needs and from his blood work looks like he is NOT MAKING. Then we will retest reflexes and blood work in 3-6 months.
Signed cautiously optimistic ...best wishes to all.
EP
PS So what do you think of my hypothesis? Do you have any ideas as to WHY the vaso-constriction is happening in so many with MS?
I am excited to show the doc that from a sitting position, I can bring my left leg/knee/foot up higher than before. It was barely coming up at all before January. It's not easy to push on the treadmill but I cried tears of joy over my progress in just the middle of January. I'm excited. I do believe that Dr. Zamboni is on to something and I'm just hoping I can do this on my own through getting my blood oxygenated through my exercise.