Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Tell us about your personal experience with Betaseron as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
deleted_user
I have been taking Betaseron for 6 months now and have not had a 2nd MRI to show progress. My symptoms have not improved and I have done 2 rounds of Solumedrol, the effect of these only lasting 3-4 weeks for swelling & numbness reduction. I would be interested to hear if anyone else has documented MRI lesion reduction or stabilization on Betaseron?
deleted_user
I am very interested in finding out about Betaseron as well...this is the 1 I am considering as I know someone who is having good luck with it.
deleted_user
I have been taking Betaseron for 6 months. I was pulled off in Feb. due to depression as a side effect ( have no history of depression) I was put on 10mg. of lexapro and put back on betaseron and have had no problems. Im having 2nd mri done in 2 months.
deleted_user
The only thing i could reply is that the side effects were horrible for me with the betaseron,so i had to change meds,but as we know side effects r different for everyone.
deleted_user
I've been on Rebif, but the MRI is showing that it is not working, thus, the doctor is changing me to Betason in double dose! It appears he really wants me on Tasabri (sp) due to the fact that I have a very large lesion in the worst possible place on the brain stem. He even wanted me to consider an off label MS drug approved for leukemia. (Time will tell.)
dnjnm
I did very well on it, just red spots at injection site, and sometimes achy, but overall, okay. Be sure to get the auto injector. My Dr. changed me to Rebif, because she felt I was having too many flare ups, but still have just as many on the Rebif.
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I have had Ttp twice this year I'm 48 my doc said the next time Ttp happens they will take my immune system. Has anyone had this done? Does it work ? What other problems do u get?
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
