Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

896 Members
21,436 Posts
0 Online
Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

Betaseron for Multiple Sclerosis (MS)

AdminTeamDS
TeamDS
Tell us about your personal experience with Betaseron as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
deleted_user
deleted_user
I have been taking Betaseron for 6 months now and have not had a 2nd MRI to show progress. My symptoms have not improved and I have done 2 rounds of Solumedrol, the effect of these only lasting 3-4 weeks for swelling & numbness reduction. I would be interested to hear if anyone else has documented MRI lesion reduction or stabilization on Betaseron?
deleted_user
deleted_user
I am very interested in finding out about Betaseron as well...this is the 1 I am considering as I know someone who is having good luck with it.
deleted_user
deleted_user
I have been taking Betaseron for 6 months. I was pulled off in Feb. due to depression as a side effect ( have no history of depression) I was put on 10mg. of lexapro and put back on betaseron and have had no problems. Im having 2nd mri done in 2 months.
deleted_user
deleted_user
The only thing i could reply is that the side effects were horrible for me with the betaseron,so i had to change meds,but as we know side effects r different for everyone.
deleted_user
deleted_user
I've been on Rebif, but the MRI is showing that it is not working, thus, the doctor is changing me to Betason in double dose! It appears he really wants me on Tasabri (sp) due to the fact that I have a very large lesion in the worst possible place on the brain stem. He even wanted me to consider an off label MS drug approved for leukemia. (Time will tell.)
dnjnm
dnjnm
I did very well on it, just red spots at injection site, and sometimes achy, but overall, okay. Be sure to get the auto injector. My Dr. changed me to Rebif, because she felt I was having too many flare ups, but still have just as many on the Rebif.
Posts You May Be Interested In
  • carrie415

    Widow/Widowers Traveling/Cruise Trips??

    Posted by: carrie415
    Last Reply: Myfavorite
    11
    I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
  • joannklingaman

    Grief

    Posted by: joannklingaman
    Last Reply: lovesloons
    11
    A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...