Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
First off!? I'd like to say Hey! to everybody, because I've been gone forever! I have not had my computer or the internet so I have not been here. I missed being here, but not having the above made it pretty hard to do so! And other then that!? Things have been wild & wooly!! Lots of UPs & DOWNS!!
One up is.... A lady at my church got a great job at Standford, out in CA, & so they sold their place here & didn't want to lug a LOT of things to CA! Her & her little girl flew out to CA. But before she did, she brought me a nice car. A Toyota Camry sedan. Looks new inside & out. Has a lot of mileage on it & is using some oil, but other then that it's fantastic! And the best part is: It has working AC!! And airbags!! Very very comfortable! Safe! Small 4cl so it gets good gas mileage!
Some of the downs have been: several EMs with the kids/dogs. My Service Dog, Chaser, almost died, with very bad UTI! But is doing better now! A few days later his doggie wife, Feather got a horrible ear infection. Is doing better now!
I have been deathly ill with some bad intestional Colitis, which may be Diverticulitis & or Chronns Disease!? Or worse! Been suffering badly! But having to wait on idiot doctors to wait until I die before they do shit! But... Finally... I have a GI appt... next county up on the 31st! Bright & early!!! And I'm sure that he will set up appt... for me to be scoped there at the hosp....!! Will just have to wait until I see him to see when that is!? And then try to get a ride so that I can do it!? Can't if I don't!!
In the mean time I'm loadin up with Bentyl, Zofran, & Flagyl!
My RA comes down to that same county next door & that's where I saw, what I'd hoped would be my new family doc! NOT!! But!? She did instantly set me up with GI doc, there at same place!
AND.....While I she was going that she decided to send me to a NEW NEURO!! WHO IS A NEW NEURO TO THE COUNTY TWO COUNTIES UP! AT THE SAME OFFICE UP THERE AS MY RA!!
I had totally given up on any NEURO or getting any answers in that area because there was just no way to do that here!! It was impossible for me to get any of that here! I had already been to the ABUSIVE,ARROGANT, CONDESENDING ASS'S HERE & that's all I got from them!! I was treated horribly!!! With them just chucking MS related symptoms up to headaches!?
I cannot afford to go far to any doctor, so that was it!! There were no others close enough for me to go to!! But this new one came to the county up the road & I found that out through her!
It was all round about really!? As I said! I had totally given up on all of that!! Too much shit! Too much grief! Too much abuse & neglect! Too much frustration! Stress!! It was doing wayyyy more harm then good!!
I don't how we got to that point really!? Somehow she was asking me about my disabilities & TBI got brought into the mix, along with the possible MS! So, she started asking me all of these questions about long term complications of the TBI! Next thing I know she'sasking me if I've ever thought about seeing a neuro about it & telling me that I should see a neuro about it!
Which seemed redundant to me!? Because there's nothing they can or will do about that!! It happened forever ago & the damage is done! No amount of anything is going to change that!
As for the MS shit!? I've HAD MORE THAN MY SHARE OF TIME TO THINK ABOUT ALL OF THAT...... & I DECIDED A LONG TIME AGO THAT THERE'S NO WAY IN HELL I WILL DO ANY OF THOSE TREATMENTS!!! NO WAY IN HELL I WILL OR CAN TRAVEL ALL THE TIME FOR ALL OF THOSE INJECTIONS!! AND I SURE AS HELL AIN'T EVER GOING TO DO THE IV CHEMO DRIP!!
I AM NOT PUTTING ANY OF THAT CRAP WITH ALL OF THE SIDE EFFECTS THAT FOLLOW, INTO MY BODY!!! I AM SENSITIVE TO ALL CHEMICALS & ALLERGIC TO MOST.... & DRUGS ARE CHEMICALS!
NOW! HAVING SAID THAT!!! IT IS MY CHOICE!!! I DO NOT, NOR WILL I EVER FAULT ANYONE ELSE FOR MAKING THE CHOICE TO DO THAT IN THEIR OWN LIFE!!! YOUR LIFE! YOUR BODY! YOUR CHOICE!!! I BELIEVE THAT ALL OF US SHOULD HAVE THE FREEDOM TO CHOSE, & THAT THAT CHOICE SHOULD BE RESPECTED, BY ALL!!!
Anyway!? I think that she sent me because of the TBI damage & not because of the MS!? But could be both!? Probably is!
At any rate I had an appt.... with him on the 15th of this month! And I will tell you all about that in my next post!!
Story continued......
One up is.... A lady at my church got a great job at Standford, out in CA, & so they sold their place here & didn't want to lug a LOT of things to CA! Her & her little girl flew out to CA. But before she did, she brought me a nice car. A Toyota Camry sedan. Looks new inside & out. Has a lot of mileage on it & is using some oil, but other then that it's fantastic! And the best part is: It has working AC!! And airbags!! Very very comfortable! Safe! Small 4cl so it gets good gas mileage!
Some of the downs have been: several EMs with the kids/dogs. My Service Dog, Chaser, almost died, with very bad UTI! But is doing better now! A few days later his doggie wife, Feather got a horrible ear infection. Is doing better now!
I have been deathly ill with some bad intestional Colitis, which may be Diverticulitis & or Chronns Disease!? Or worse! Been suffering badly! But having to wait on idiot doctors to wait until I die before they do shit! But... Finally... I have a GI appt... next county up on the 31st! Bright & early!!! And I'm sure that he will set up appt... for me to be scoped there at the hosp....!! Will just have to wait until I see him to see when that is!? And then try to get a ride so that I can do it!? Can't if I don't!!
In the mean time I'm loadin up with Bentyl, Zofran, & Flagyl!
My RA comes down to that same county next door & that's where I saw, what I'd hoped would be my new family doc! NOT!! But!? She did instantly set me up with GI doc, there at same place!
AND.....While I she was going that she decided to send me to a NEW NEURO!! WHO IS A NEW NEURO TO THE COUNTY TWO COUNTIES UP! AT THE SAME OFFICE UP THERE AS MY RA!!
I had totally given up on any NEURO or getting any answers in that area because there was just no way to do that here!! It was impossible for me to get any of that here! I had already been to the ABUSIVE,ARROGANT, CONDESENDING ASS'S HERE & that's all I got from them!! I was treated horribly!!! With them just chucking MS related symptoms up to headaches!?
I cannot afford to go far to any doctor, so that was it!! There were no others close enough for me to go to!! But this new one came to the county up the road & I found that out through her!
It was all round about really!? As I said! I had totally given up on all of that!! Too much shit! Too much grief! Too much abuse & neglect! Too much frustration! Stress!! It was doing wayyyy more harm then good!!
I don't how we got to that point really!? Somehow she was asking me about my disabilities & TBI got brought into the mix, along with the possible MS! So, she started asking me all of these questions about long term complications of the TBI! Next thing I know she'sasking me if I've ever thought about seeing a neuro about it & telling me that I should see a neuro about it!
Which seemed redundant to me!? Because there's nothing they can or will do about that!! It happened forever ago & the damage is done! No amount of anything is going to change that!
As for the MS shit!? I've HAD MORE THAN MY SHARE OF TIME TO THINK ABOUT ALL OF THAT...... & I DECIDED A LONG TIME AGO THAT THERE'S NO WAY IN HELL I WILL DO ANY OF THOSE TREATMENTS!!! NO WAY IN HELL I WILL OR CAN TRAVEL ALL THE TIME FOR ALL OF THOSE INJECTIONS!! AND I SURE AS HELL AIN'T EVER GOING TO DO THE IV CHEMO DRIP!!
I AM NOT PUTTING ANY OF THAT CRAP WITH ALL OF THE SIDE EFFECTS THAT FOLLOW, INTO MY BODY!!! I AM SENSITIVE TO ALL CHEMICALS & ALLERGIC TO MOST.... & DRUGS ARE CHEMICALS!
NOW! HAVING SAID THAT!!! IT IS MY CHOICE!!! I DO NOT, NOR WILL I EVER FAULT ANYONE ELSE FOR MAKING THE CHOICE TO DO THAT IN THEIR OWN LIFE!!! YOUR LIFE! YOUR BODY! YOUR CHOICE!!! I BELIEVE THAT ALL OF US SHOULD HAVE THE FREEDOM TO CHOSE, & THAT THAT CHOICE SHOULD BE RESPECTED, BY ALL!!!
Anyway!? I think that she sent me because of the TBI damage & not because of the MS!? But could be both!? Probably is!
At any rate I had an appt.... with him on the 15th of this month! And I will tell you all about that in my next post!!
Story continued......
I hope you find some peace and stability in your life. I think its important to have an advocate on your side. So happy you have a car! now you can get to and from grocery stores or just get to the movies.
I just went and listened to a med Dr. but she's also a naturopathic herself. And she said everything starts with the gut.
Good for you I would be real interested in any info you can pass on to me.
I quit tysabri my Husband has RA and he quit Enbrel right now we both feel better have energy just hoping it lasts.
Your story is fantastic! Good for you makes me HAPPY!