Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Sick, frustrated, depressed, tired, mad, annoyed. Here we go again. A 4th round of antibiotics, a second round of prednisone, and a second or third possibly lengthy engagement with the nebulizer--this time with two different meds. Chest x-ray shows pneumonia or bronchitis or something more serious or a combination of a couple of things. I have been doctoring for this for two months and FINALLY the nurse practioner I saw suggested a chest x-ray. I'm glad she ordered one, but scared. I smoked for many years but quit around 5 years ago. I'm afraid of chronic bronchitis or something even worse. As if the MS, diabetes, and asthma aren't enough. Sorry, I'm bordering on the edge of a pity party.
MS symptoms are manageable, but somewhat exaggerated, especially the memory issues, speech, balance, emotional temperament, and fatigue.
*My questions/concerns for those of you who might have answers or have had experience with any of these topics:
Do you get ill more often, more seriously, with MS?
Is recovery time longer than if you didn't have MS?
Do you continue to take your CRAB injection while you are sick? This is what I really need to know--I know I can call the MS Nurse, but I've learned that the people on this site know a lot more than many in our medical profession.
Do you let your MS doctor know when you come down with a serious illness?
Is this a big sign (I usually have to get hit over the head to get life's big 'messages') that I need to scale back work or quit? I don't want to quit anymore.
I've been dealing with sinus, bronchitis, pneumonia (pick one or all) since Labor Day. I think/I truly hope I may be one the road to recovery, but really need your advice--especially those of you who are the 'veteran' MS'ers.
Oh, I have the R/R MS, at least that's what it looks like (diagnosed one year now). I just want to feel better (don't we all). It seems like I can only handle one disease or illness at a time. Thanks to any of you who respond! I so appreciate you and this site!
Michelle
MS symptoms are manageable, but somewhat exaggerated, especially the memory issues, speech, balance, emotional temperament, and fatigue.
*My questions/concerns for those of you who might have answers or have had experience with any of these topics:
Do you get ill more often, more seriously, with MS?
Is recovery time longer than if you didn't have MS?
Do you continue to take your CRAB injection while you are sick? This is what I really need to know--I know I can call the MS Nurse, but I've learned that the people on this site know a lot more than many in our medical profession.
Do you let your MS doctor know when you come down with a serious illness?
Is this a big sign (I usually have to get hit over the head to get life's big 'messages') that I need to scale back work or quit? I don't want to quit anymore.
I've been dealing with sinus, bronchitis, pneumonia (pick one or all) since Labor Day. I think/I truly hope I may be one the road to recovery, but really need your advice--especially those of you who are the 'veteran' MS'ers.
Oh, I have the R/R MS, at least that's what it looks like (diagnosed one year now). I just want to feel better (don't we all). It seems like I can only handle one disease or illness at a time. Thanks to any of you who respond! I so appreciate you and this site!
Michelle
Yes, continue takeing the CRABS. It's probably best toclear up the infection befor you make any choices. i also get sinus infections, idon't run fevers so they are usually pretty bad before I even notice. I am larning to react quicker and pay closer attention to signs. About recovery time...hmmm...Idon't know likeisaid myinfections are pretty advanced before iseek treatment. I find I get sickless, many times I have been around ill people and not caught the latest virus. Our immune systems are not weak...just misguided. I do drop an emil tomy Dr if something imprtant happens that Ithink he should know otherwise Ijust update when igo for checkups.
I understand being at wits end...I suggest focus and geting past this episode before youmake any decisions.
Feel better!
Good luck and get better.
viv
i've learned what overdoing it is for me with m.s. you should be able to tell if work is making you worse or not.if your not sure then keep a small tablet with you and journal how your symptoms are and what you were doing at that time.that could help you to see if there is a work related pattern
I don't get sick as often now that I am retired. But I also have a sign on my door that says basically if you are sick, been around someone who was sick, call, email or ask for a face mask before entering.
That has stopped a lot of illnesses from coming inside my home.
I usually call the neuro nurse & tell them if I have a fever. If I get to 100 my body starts acting like MS has taken over
If you're on meds, CRABs, whatevers, and you're sick, you should ask the prescribing doc what they think about continuing or stopping.
Especially with the CRABs, if you get sick, that can trigger an exacerbation. If you're doing injections, get sick, and then stop, aren't you Stopping Just when you want them to be helping you the most? That's when you need the protection most, no?
I don't know about the CRABs but I do know the last 4 1/2 years have been my healthiest.
Looking back over my medical history though, I must say, it's my Chiropractors that have been the best Medicine when I do have problems. I still have incidents, but I go running to my chiros and they put me back together again so my body doesn't have the chance to attack itself.
I also changed my diet through the last few years, especially the last 21 months when I had to learn to feed myself.
So it's not just One thing, it's all things complementing each other.
If you're a Kindergarten teacher, then chances are you'll catching everything under the sun from September through November. It's all relative.
Best of luck to ya, I hope you figure out what the deal is. The Body is Not a happy camper.
I kept taking my CRAB;s while I was sick....I am not on one now due to allergic reactions...but I am still looking for one to take.I smoke also...trying to quit....emphsemia(sp) is something else u will need to worry about also...My dad died of it and cancer and some other probs...horrid way to go...so I am trying to quit. My dad didn't smoke but my mom did in the house. I smoke outside...anyways many hugs and best wishes
hugz
Morgaine
JHad
em
Love to all of you!
Michelle