Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Last Sunday the left side of my body started tingling. By mid last week, I couldn't feel my left leg, and by Friday I couldn't feel the left half of my rib cage or breast. Saturday night, my big toe on my right foot started tingling and now my entire right foot is tingling.
I figured that my MS was acting up because of the frequent changes in weather (back and forth from high and low pressure weather systems) because the changes in weather usually cause my crohn's disease to act up. However it's been a week now, and the numbness is spreading and worsening.
At what point do I need to call my neuro? I do not want steroids under any circumstances. The last two times they put me on 5 days of IV steroids, they didn't work. They didn't work and the made me crazy and fat and gave me bad acne.
The numbness is starting to affect my life. Now that I can't feel my feet it's hard to tell if I am correctly stepping on the stairs, and I have fallen down the stairs a few times now (luckily I can't feel half of my butt, so it didn't hurt much!). I know I could just watch my every footstep, but then I start walking into things which presents a new problem.
Should I just wait it out? Or should I call my neuro and let him know what's going on? Would it even matter if I told him since I don't want steroids?
I figured that my MS was acting up because of the frequent changes in weather (back and forth from high and low pressure weather systems) because the changes in weather usually cause my crohn's disease to act up. However it's been a week now, and the numbness is spreading and worsening.
At what point do I need to call my neuro? I do not want steroids under any circumstances. The last two times they put me on 5 days of IV steroids, they didn't work. They didn't work and the made me crazy and fat and gave me bad acne.
The numbness is starting to affect my life. Now that I can't feel my feet it's hard to tell if I am correctly stepping on the stairs, and I have fallen down the stairs a few times now (luckily I can't feel half of my butt, so it didn't hurt much!). I know I could just watch my every footstep, but then I start walking into things which presents a new problem.
Should I just wait it out? Or should I call my neuro and let him know what's going on? Would it even matter if I told him since I don't want steroids?
I think Betaseron is working for me at the moment, I haven't had a new symptom develop since last fall, and tysabri scares me. I know there's a very low chance of it killing you... but I just don't want the added stress of worrying about my medication killing me.
For a while I was feeling so good that I thought maybe I wouldn't have MS screw with me for a long time and it's scaring the crap out of me. I've started taking valium to make sure I sleep instead of laying awake stressing about what may or may not come next.
Some times I think cancer would be easier... then at least there are two outcomes... you live or you die and it's not going to suck forever.
No, absolutely none PML has occured in the firsts 12 infusions of Tysabri - so there is a year worry free- and next year they should have a blood test out top determine if a person has the virus for PML that goes out of control sometimes wit TY. If they have it they don't use Tysabri, if they don't have it they can use Tysabri.
I just tell you that- for you to keep your ears open to to changes in case you need to consider it in the future. I respect your current view on it, just keep your ears open in the next year for developments on it.
I'm glad you realize you need to call the doc about it,.