Multiple Sclerosis (MS) Support Group

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brianap 02/18/2011

I was researching amino acids in MS and histamine came up, along with some work done in the 50's using histamine as a treatment. Someone came up wigh Procarin, which is combination of caffeine and histamine. Hadn't heard of it before. Anyone else?

deleted_user 02/18/2011

it came up before, i book marked it because i thought it was interesting. here are the links i book marked.

http://edmsllc.com/

http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/7360102-prokarin

ezone 02/18/2011

I looked it up on the web and came up with this website below that basically debunks all alternative therapies. But here is the website that says it is not reputable:

http://www.quackwatch.com/01QuackeryRelatedTopics/ms.html

The thing is the quackwatch website debunks the diet idea and I think that diet is VERY IMPORTANT to me. BUT the idea of caffeine to someone with MS and who uses a cath daily is a problem. When one gets UTIs regularly (myself), I have to limit my caffeine so I don't think that prokarin is a viable idea for me. It does help limit the fatigue but doesn't caffeine do that anyway??

Also, the therapy costs $250/month so one has to consider the benefits realistically. If you have the money, why not try it? Let us know how it works and we can then try it ourselves. The drug companies are not going to give it clinical trials and give it FDA status so that our insurance covers it so we have to do the experimenting ourselves. I cannot do it because of the caffeine. Good luck to those who can. Thanks for throwing this idea out there. We need all the ideas we can get.

One other thing, I have allergies. Doesn't histamines make allergies worse? Please help me on that question.

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