Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hello! I joined DS awhile back, but have yet to join in. I would like to introduce myself as well as ask a few questions.
I'm 32 and live in Italy. I was diagnosed with ocular myasthenia in 2011 after a summer of really bad double vision and ptosis with facial weakness/twitches.
In 2013 was diagnosed with MG, MS, and trigeminal neuralgia, but I've not had too many symptoms meanwhile as long as I pace myself and have not taken meds since then.
In February, I started to notice and that I was hearing from a lot of people how red my face was going and it came along with shortness of breath. I'd also start feeling like I was going to pass out, seeing "stars" and losing my sense of balance. My legs will start to sweat and tingle. This is very strange and I'm trying to get an idea of where it's coming from. I am also gasping for air and choking on everything which I've been told is likely the MG, but I'm just not sure. Sunday I inhaled/aspirated a whole gulp of liquid and ended up on the floor unable to pull in a breath at all for nearly a full minute which was very scary.
I also have some thyroid issues. Could this feeling be connected to MS? My family doctor said I have dyspnea and maybe hypercapnia and ordered a spirometry test that came back normal in spite of my shallow breathing (should they have tested more than one breath?) and blood gas tests that I'm waiting on the answers back. I see my neuro later this month.
Do you experience this or is this likely something else or even nothing to worry too much about as it is? Thanks in advance for any input. :)
I'm 32 and live in Italy. I was diagnosed with ocular myasthenia in 2011 after a summer of really bad double vision and ptosis with facial weakness/twitches.
In 2013 was diagnosed with MG, MS, and trigeminal neuralgia, but I've not had too many symptoms meanwhile as long as I pace myself and have not taken meds since then.
In February, I started to notice and that I was hearing from a lot of people how red my face was going and it came along with shortness of breath. I'd also start feeling like I was going to pass out, seeing "stars" and losing my sense of balance. My legs will start to sweat and tingle. This is very strange and I'm trying to get an idea of where it's coming from. I am also gasping for air and choking on everything which I've been told is likely the MG, but I'm just not sure. Sunday I inhaled/aspirated a whole gulp of liquid and ended up on the floor unable to pull in a breath at all for nearly a full minute which was very scary.
I also have some thyroid issues. Could this feeling be connected to MS? My family doctor said I have dyspnea and maybe hypercapnia and ordered a spirometry test that came back normal in spite of my shallow breathing (should they have tested more than one breath?) and blood gas tests that I'm waiting on the answers back. I see my neuro later this month.
Do you experience this or is this likely something else or even nothing to worry too much about as it is? Thanks in advance for any input. :)
Do you have problems with speech as well? If you do then this can contribute towards shortness of breath & bad swallowing.
I dont know what mg or the other things so cant commeny on them.
red fsce, shotness of breath, loss of balance, stars ec can all be linked together & it could be from ms or even a type of asthma.
Sorry cant shed any light on it for you, wanted to let you know you are being heard.
Thanks again for the reply. :)
Welcome!! Sending private message...
Warm thanks for the replies...
Choking seems to be a symptom some people have (not myself yet though).
Most of my symptoms are mobility ones (balance, walking distances, left foot dragging). Ingesting magnesium seems to help from having muscular pain.