it breaks my heart everyday, he is home from work and so very exhausted (can only work part time now) I told him of the spoon theory so he has gone to find a few extra spoons AKA take a nap (he never did this and could keep going on minimal sleep for days)

Hi Sharon
Fatigue is also a huge part of my MS, Some days I scoff down energy drinks and coffee like it is going out of fashion, just to make it through the day.
Maybe suggest a Zimmer frame to him or one of those assistive walking devices, I use my cane all the time, it helps with fatigue, a little bit:-)
The spoon theory helps, but not always, sometimes I wake up and I don't have any, I have to still work a full day as out daughter goes to a special needs school, private school fee rates, I also had to buy myself an automatic vehicle, as my left leg sometimes refuses to work. It Sucks, I know, we have cut bread from out diet, it seems to help a bit with energy, I also consume very little sugar.

Good Luck and lots of hugs

Hi Rincewind thank you for your reply david got a kick out of the idea of a zimmer frame, he too uses his cane always now and often uses the wheelchair not for weakness or numbness but sheer co-ordination but he cant use this inside the house and tries to be "a man dad" when out with the boy he keeps telling me not to worry but after 20 years of marriage that's impossible. we have only been at this a few months but if its going to be years before we get some answers I think I may just go mad

I gather you are waiting for a firm dignosis (dx)? When you are seeing these issues write them down & have a diary with when David fell, when any thing else happened - like lost feeling etc or anything that affects the day & may help the Dr's know what is happening. Take it in list/dot form with 1 copy for you & 1 for the Dr & to keep.
In the meantime take care.

Hi Sue and thank you no he doesn't have a diagnosis yet (apparently they want to test for all 300 illnesses that mimic MS) I think one of the problems has been we have had 2 neuros until I recently decided to sack the local generalist and stick with the MS guy in Sydney (which poses its own challenges being in Canberra). the MS specialist is hesitant apparently the lesions are in the wrong place (too far out at the edge of the white matter for MS) and he thinks its more likely some sort of vascular thing (which smacks of dementia, thanks anyway but I will take the MS) also no O bands on LP. very frustrating luckily I have a medical background so I know what buttons to push, drugs to ask for and specialist's to consult. but the whole feeling like a hypochondriac thing is very wearing

Is there hippotherapy (horse riding therapy) where u live? I have been doing it for 2 months so far. The 1st fee weeks were exhausting, but after that I feel energized. It has strengthened my core muscles as well as my balance, coordination & fatigue. Hope this helps.