I've been on DS for a couple of years now and have been in MS limbo for all of that time. I'm still in that exact same spot and have been trying to ignore possible symptoms and go with what the doctors tell me after they do some tests, "it's all in your head." When I list my symptoms and they do a neuro exam they suggest MS, but then when they get the test results they say my tests come back clear. I've even stopped pursuing any type of diagnosis. Most recently, I've been told I might have IBS. Last weekend, my husband had the opportunity to talk to one of the leading MS neuros in the country. After talking to her for a few minutes, she told him that I should find someone to do an IgG-NMO test and the new test for MS biomarkers. She even said that she was pretty sure I don't have IBS, but that my GI symptoms are more likely due to MS or NMO. Problem is, I am a VA patient so going somewhere like Mayo or Cleveland Clinic is pretty much out of the question unless I can get a referral and use my private insurance. I've had several people suggest that I try going to an MS specialist, preferably at Mayo or Cleveland Clinic, but I'm not sure I want to do that. I'm just afraid of being told by more people telling me they can't find anything wrong and there is nothing anyone can do. I may talk to my GP about this when I see her in a few weeks, but I'm not sure if I should pursue this further or not.
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