Multiple Myeloma Support Group
Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow that produce antibodies. Its prognosis, despite therapy, is generally poor, and treatment may involve chemotherapy and stem cell transplant. It is part of the broad group of diseases called...
Hi,
January I was diagnosed with multiple myeloma at the age of 35. My symptoms was so minor I didn't even to think about it being something serious. I had shoulder pain for 2-3 weeks, I got what I thought was the flu or stomach bug for about 1 1/2 weeks, had weight lose which I thought that was from being ill, and right flank pain for a week. I finally decided to go to the er when I woke up one morning and my left arm wouldn't move. I will thought it had popped out of socket and I would be out work for less than a week and be back nothing happened. I was shocked when they just kept running test especially for a dislocated shoulder but that thought was taken away when they told me all of my levels were way off. They found that my kidneys were almost completely shut down. They told they was going to admit me because they told me they had found something that looked like a bone leisions. I already knew what that was from a previous scare earlier that year. I told them just sit up a full body bone scan for the next day and I'll be fine. I got told that they thought I cancer and I was getting admitted and then the doctor left me there without any answers. I spent 6 days in the hospital and they told me I was on a renal diet because I had acute renal failure. On the 5th day they did a bone marrow biopsy and they told me it would take about 7 days to get the results back. I went home the next day. 7 days later on my 35 birthday I got my bone marrow biopsy results back and it was positive for multiple myeloma and it was stage 3 and they wanted me to see the oncologist that would be setting up my chemo. I went in with my mom the next day and spent a hour and half learning all about multiple myeloma because I had no idea what it was. I learned that at bare minimum 5 years but I could live up to 20 years. I have a rare case of multiple myeloma because of my age and I got it 30 years early. My multiple myeloma is aggressive and he wants to attack aggressively too. I started chemo a 3 days later and I do chemo 2x a week. Since then I have been to Barnes Jewish Hospital twice. First time I learned that not only did I have bone leisions on my left arm and right 6th rib but I also have them on my skull and spine. They did xrays to see how my left arm was doing and the results was bad and I needed surgery soon because they were afraid it could break at anytime. I had went back thinking I was going to an appointment with a local orthopedic specialist but 2 days later they called me back and said that their orthopedic surgeon said she wanted me to have surgery at Barnes. On February 15th I had my consultation and the 19th I had surgery which was completely successful. They scraped the tumor out, put cement in it to strength the bone, put a roughly 6 inch long metal plate over it with 10 screws to hold it in place. I get my stitches out on Monday and see how they feel my arm is doing. I resume chemo possibly the 8th of this month. I have been taken of my renal diet because my kidneys are back to normal function. Unfortunately I have been diagnosed with amnenia in neoplastics, ckd (chronic kidney disease) stage 1, and have risk factors for obstructive sleep apnea. So I'm a little worried. Anyone else with this diagnosis only reason I ask is I would like a little advice of what to expect/do. Thank you for taking the time to read all of this