MS People Dealing with MS Pain Community Group
So many people have pain from their Multiple Sclerosis in so many ways. Some from spasms, some through neuropathy, optis neuritis eye pain, etc. This group lets you "talk" about your pain and offers assistance to others who experience all kinds of MS pain related issues. Through your participation, you are helping folks find a centralized place for all their questions and...
StuckAtHome
My neurologist has decided to send me to physical therapy for my leg spasticity, other than that he's not interested in my other symptoms. One of these other symptoms is pain. The spasticity causes me pain. I also get a nasty burning feeling in both feet and legs. In addition, every day around 11 am I begin to feel tired and my whole body starts to ache like I've been full body exercising all day. It gets continues to get worse throughout the day.
I thought the neurologist would be a doctor that would be able to help me with these issues. Does this mean that he's not doing his job well or is this common even for a decent neurologist? I would think that even just knowing about the spasticity would clue him in that yes I have really bad pain. Should I be looking for a new neurologist? I don't know who I should see for the pain issue. Should I go to my general doctor?
I thought the neurologist would be a doctor that would be able to help me with these issues. Does this mean that he's not doing his job well or is this common even for a decent neurologist? I would think that even just knowing about the spasticity would clue him in that yes I have really bad pain. Should I be looking for a new neurologist? I don't know who I should see for the pain issue. Should I go to my general doctor?
lchoppel
When I was first diagnosed, I was sent to the best place in the state of Maryland for MS treatment. Through my appointments, I complained of the pain I was in. It got to the point that I was constantly crying the pain was so bad. I would call, and got a roid treatment through this neuro. That didn't help the pain much. Again, crying to him, I finally pissed him off so much that he told me to go see a pain management specialist. I had never heard of such a doctor, and went to my pcp and asked about such care. She referred me to a terrific group in my hood and I've seen them ever since. I am treated with opiates only after trying everything other to no avail. I have improved my quality of life by at least 75% through this treatment. However, my point is that my neuro, who was suppose to be the best in the area never really was able to treat my pain, and just listened to me whine about it until out of frustration he almost yelled at me to see a pain management specialist. Like I was suppose to know about such a doctor! Needless to say, I left that MS Center and got a referral from the pain management doctor for an excellent private practice neuro and I absolutely love him. He knows all about MS pain and treats me with respect in dealing with my pain, but he works closely with my pain management specialist. My current neuro does not treat my pain. It is not his speciality. I don't think neuro's are equipped to deal with all that pain management requires, that is why it is a separate and independent pratice! Good luck, and look for a pain management specialist, either referral from your current neuro or from your pcp.
StuckAtHome
I hate the feeling of "giving in" and going to get something to deal with this pain. Somehow it feels like if I do I will be acknowledging that it isn't going to go away any time soon. Stupid I know. I know it will help but I hate medication. I am bipolar and was misdiagnosed until this year. The doctors tried me on every antidepressant and antipsychotic medication you can think of from the time I was 15. At one point they had me on 5 or 6 medications at the same time, I felt like a walking zombie. The mood stabilizer I'm on now really seems to help but I'm hitting the time of year where I think I'm going to need an antidepressant thrown in there too (another medication, ugh). I feel like a human guinea pig at times. Sometimes I wonder if all the medication they put people on really helps or if it messes us up more. Having had these past experiences makes it really hard for acknowledge that I really should ask for medication at times. That being said I think I've come to terms with the fact that my pain may not go away any time soon, and that I guess I do need to do something about it. I don't have an appointment with my neuro for another 2 months. I will see if I can get into my pcp and either have him prescribe something (which I think he might do) or have him refer me to a pain management specialist. I really appreciate your advice Lynne, thank you. :-)
deleted_user
I Called The MS Society and ased for names of Good Knowlegable DR`s who Specialize in or Treat Many Patcients with MS. Gonna see Him As Soon as I`m well Enough! GOOD LUCK! Friendship,Peace,Love,Gentle Hugs,Care,Support,Best Wishes & Prayers Always. Wishing You Reliefe from your Pain & symptoms. Indigo
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