MS People Dealing with MS Pain Community Group

So many people have pain from their Multiple Sclerosis in so many ways. Some from spasms, some through neuropathy, optis neuritis eye pain, etc. This group lets you "talk" about your pain and offers assistance to others who experience all kinds of MS pain related issues. Through your participation, you are helping folks find a centralized place for all their questions and...

47 Members
95 Posts
0 Online
Brain & Nervous System
/ MS People Dealing with MS Pain Support Group

took off oxycontin 30 mg put on diladid

deleted_user
deleted_user
last tues my pm doc of 6 mnths takes me off oxy 30 mg 3 a day..puts me on diladid 4 mg 2 a day....it doesnt work and im in withdrawles.....he left the practice the next day...i got an appt today with the new doc...ive already been told they will not write that for anyone..what am i to do???...my friend saw him yesterday..he babbles out..wrongful death suits from people dying on oxycontinb..blah blah....i take my meds as prescribed..ive got severe pain and for a week ive not slept,ate or gotten out of bed...anyone who see's this/..please pray for me!!!!!!!!

amy
deleted_user
deleted_user
oh...and im on 60 mg morphine e r 2 a day..not helping..i do have a new doc that i will have records sent to today if they dont write my oxy..and ill sue them for putting me in w/d's!!!!!!!!!!!
Group Founderlchoppel
lchoppel
I just saw this post, after reading your post on the main board about waking up to pain this morning, Tuesday, 1/17. I'm so sorry you are geting the run around from these doctors. I would run (sorry to have to make you run) to another pm doctor as soon as possible. Your pain management doesn't work for you and you need a doctgor that will prescribe the right medication for you. You know what works obviously for your body, and sprewing crap about deaths from oxycotin is not helping you. You need a supportive pm doctor. Have you tried long acting (time released) oxymorphone or one of it's sister meds? I take pain meds twice a day, every 12 hours to keep me pain free, and have break through (instant relief) medication that I take for when my pain becomes unmanageable from the time released dosage. I had to kiss alot of frogs (try different pain meds) before I found the right cocktail for me. I think you need a pm doctor that is willing to try you on some other medications. Especially since the morphine isn't working. Good luck sweetie!
deleted_user
deleted_user
hey girl....im updating this...i saw the new doc...he put me back on oxy but...his office will only write for 3 more months....long story short..i found new clinic..my records from current finally made iot to pcp now today shes sending therm to new clinic thaty can get me in in time for med refills,im only hoping he will keep me on the oxy and try another long acting drug...
Group Founderlchoppel
lchoppel
good. When we talked on the phone, you sounded like you had a good plan. Like you plan on doing, I would discuss Opana. I take 40 mg. twice a day. I still need breakthrough pain meds occassionally, and then I take Opana ER. The combination seems to work 90% of the time. I'm glad this issue is getting the attention that it deserves. Good luck sweetie!
carolinagirl123
carolinagirl123
Im on oxycontin 30 extended release, take 1 every 12 hrs and I'm allowed 3 a day 15mg roxicodone. It took me nearly three years to get this medicine. Nothing else they tried worked. You have to stick to your guns in be consistent with them and tell them your medication is not working. I know the pain clinics are under a lot of FDA regulations now so it's hard to get good medications because so many people that abuse them. It is not fair to the ones that really suffer.
lorrieonline
lorrieonline
FDA needs to step aside and let people decide what they are willing to take. This is a very huge issue that really needs some heavy-duty addressing. Even things like vitamins are being affected. These people have way to much say over our personal choices and it's getting worse all the time. I sign petitiions as they come up but I'd like to do more. If we want pain killers, it's our choice. If we want vitamins, it's our choice.
dawizz95
dawizz95
Amen lorrie, Amen.

I'm so sick of these SOBs that I quit taking the morphine ER. It wasn't doing as much as it needed to so I cold turkied off of it not long ago. I have fired my doctor as she is an ASS, calling me up on the phone screaming at me. These doctors get away with abusing people like us BECAUSE THEY CAN GET AWAY WITH IT. No one knows what goes on during your "visit".

Sick to death of all of it. I really wish I'd just plain *check out* permanently rather than to continue living with this damned peripheral neuropathy and no support whatsoever from anyone, esp. the Chronic Pain group. *barf*

Cheers! NOT!!
Posts You May Be Interested In
  • lorrieonline

    Weekly Weigh-In (June 1) Fat Has Purpose

    Posted by: lorrieonline
    Last Reply: lorrieonline
    4
    Usually I get a daily influx of emails on health topics.  An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism.  Another new factoid for me.  The bottom line for me was to appreciate that even our fat cells play a...
  • GreenEyes727

    I Called Out This Morning

    Posted by: GreenEyes727
    Last Reply: GreenEyes727
    5
    I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital.  I don't think that we will have her much longer.  She is very frail.  Now she needs help eating.  So, this is the third time in a year that I felt this way after crying.  I think crying releases toxins into my body.  I also worked up a sweat at the gym...