good morning, I'll talk to you. that's all I've needed for years but have had no success. the web appears to be crawling with individuals affected by this but nobody has really been there. I gave up. in fact, I had no intention of every logging on to this page again until a random notification popped up on my phone last night, it was your post so now I will do for you what I so desperately needed someone to do for me the past few years.
this thing is unbelievable, the way it changes day to day. how it is able to alter your physical appearance and core personality. it isolates you from society. it makes you somthing other than what you were when it chose you as it's home. I want you to know that you are not crazy, there is no reason to feel ashamed of what's happening to you. the reason you question your own sanity, the cause of any self doubt is the doctors, family and friends you've gone to for help do not understand. they never will. you probably don't really want them to. if they do any type of research on this, they will find nothing but crazy people ranting and documents that prove this doesn't exist. what you have is real, it's not going to stop and it'll get better and worse as time goes on. try not obsess on the discomfort and listen to what your body tells you to do for relief. If you need anything, I will be here for you.

have a great day, forget the world with all its judgements and just do what makes you feel like you. the purpose of life is being content, being genuinely happy every day.

You are not crazy there are millions just like you look up william windsor=king on facebook

I always need someone to talk to text me 312-725-8483 -Nikki

Hello, I am new..I was scared to death when this hit me...even had thoughts I was losing my mind until they started showing up on my body. I got a microscope and saw what was the most frightening My. Eyes have ever seen...I personally tried so many different things, then while at Wal-Mart's I saw a different scrub I had never tried..if you are interested it is called BLACK AFRICAN BAMBOO CHARCOAL BODY SCRUB ....and BLACK AFRICAN ECZEMA & PSORIASIS THERAPY BODY WASH..They Have LOTION also it says to use charcoal 2-3 times aweek but when I itch or feel biting I put some on a cloth or by hand and rub it a little bit hard in a circular way and then just rinse cloth and wipe it gently so some film stays on it and that takes away itch and pain. It has even helped my spots dry up..to where I can be comortalbe..I have put tea tree oil in a LOTION (quite strong in smell).. and rub it all over me at night even my hair and it has helped me so much, that now only once in a while I will feel a bite or itch..and soon as I do I either scrub it with chaorcoal scrub or just dab tea tree.oil on it...I also use the charcoal on sore places when I bathe even if it don't itch to try to stay ahead of it. I lay in a very hot tub of water when I bathe..then when water starts to cool down I Use the BODY WASH...and shower off...but just dry gently so you don't rub it all off drying...I really hope this helps someone or many of you...You are ALL in my Prayers and Pray they recognize this horrible disease and find a cure!!

You are not alone,I am going on 4 years with theses monsters inside me it has stinging biting under my skin and in my clothes I am not sure how much more of this I can take

Hello there, this is all so new to me. I'm truly sad to have this happen to me. My episods start every night around 9:00 and last until 5:00a.m. Does anyone have it in their fingernails and finger beds? I get the biggest blisters on my cuticals, that I have to tear open. Once I do that I have to squeez and then pull out the long pieces of what looks and feels like glass. Very painful! I have to keep them wrapped up all the time. I've been to 4 doctors and not one of them even knew what it was and said call your shrink or your skin is dry. I have it from head to toe. I've only had it for 4 months and I'm ready to take pills and go to sleep for good. I can't take much more than this. As I wrote this I'm picking them out of my lips. Please, someone tell me this will go away soon!!

I also have no one to talk to about this. I figure they would not believe the horrors of thisdisease. I have taken pictures and videos of wild, fighting hairs, things exiting wounds and lesions spreading. Doctors won't even look at them. They don't believe the sores quickly spread by themselves. They say I am creating them by scratching them open. All they have to do is look at my skin and watch it happen. It's totally frustrating, lonely and downright scary! I am available to talk anytime I feel up to it.

Does anyone else get holes in their clothing from this stuff? I have to throw away my socks after 1 day, they are full of holes and white balls. All of my shirts and jeans are full of holes as well as bedding, or any surface that is exposed to this stuff. As far as being contagious, I think it can be if you don't have a healthy immune system. My pet rat and Kingsnake died from it. My dog got the stuff in his nose and it blocked his nostrils. He died when it spread through his sinuses. I feel terrible about my pets contracting it from me. My anxiety level is sky high. This disease is like a sci-fi horror show!