Morgellons Disease Support Group
Morgellons or Morgellons disease is a controversial name for an alleged polysymptomatic syndrome characterized by patients finding fibers on their skin, which they believe are related to other symptoms, including intense itching, skin lesions, as well as a wide range of other chronic symptoms. These symptoms are occasionally accompanied by the belief in an infestation by...
hello, my name is Dana. I’ve never joined a group like this, so I hope I’m posting in the right spot. I’m 30 and my life is falling apart right before my eyes every day and I feel absolutely helpless to do anything to stop the misery, fear, and loneliness I feel because of this disease. I feel so let down and mistreated in the most enormous way by doctors now. This is so real, and the fact that I’m not believed by my own family and friends, on TOP of my doctor(s) only compounds the sheer level of isolation and pain I’m already going through.
Im truly at a loss. I’ve had to quit working (I’m a cosmetologist by trade, but cannot work on clients with open lesions all over me that don’t heal.) I live with my dad now, who doesn’t believe me and thinks I need psychiatric help. I do not. My life is on hold—I don’t want anyone to see me because it’s so bad now. I haven’t seen a friend in months. My ex and I were already having problems, but I’ve cut off communication with him because he accuses me of doing drugs (I don’t). I don’t even see him anymore either.
I really thought I found the answer to this when I was googling doctors one bad night in sheer desperation and found Dr. Karjoo just 10 minutes away. I’ve been seeing him for 2 months now, and while I have seen small improvement, I’m still suffering badly and running out of funds to keep doing this, as his products are very very expensive. I’m really sad about this because I thought getting rid of this was actually within my grasp..well, I’m beginning to doubt that feeling now, and with it, the crushing of both my soul and my hope. I just don’t know who to believe anymore. Can anyone help me? I need a friend who understands. Please email me @ nomoshtooposh@yahoo.com
thank you
Dana
My heart bleeds for you. I just realized I also have this after thinking for a year it was bird mites. I too have lost everything and have been isolated for a year. I work from home but need to travel, so my job is in jeopardy and my airbnb funds are drying up. How are you doing today?
Have you read Ginger Savely newest book on Morgellons? She has a list of more affordable items that do help. I found the biggest improvement from grapefruit seed extract and the debugging or sulfur based soap. There are self help tips everywhere but hers seem to be more tested.
I was a sales rep and lost my job too. You can’t really present to people with open sores on your face/lips like I have. I’m just starting treatment- took 5 years for a diagnosis- so I have my fingers crossed I will see improvement. Stay strong.
I know what I have and YES it’s real, morgellons and for all of us who suffer, we can get through this, with faith, support and all of the remedies that suffers over the years have tried and proven to work. I hope one day, it will all go away and find the cute, but until then, keep your head up, support, and never give up.