Migraine Headaches Support Group
Migraine is a neurological disease, of which the most common symptom is an intense and disabling episodic headache. Migraine headaches are usually characterized by severe pain on one or both sides of the head and are often accompanied by photophobia (hypersensitivity to light), phonophobia (hypersensitivity to sound) and nausea.
I have had migraines for 40 years. Been thru the doctors,allergist, ent, chiroprators etc. \
I ended up on disability a Godsend, I was able to work, missing days, heard the insensitive comments from co worker, family and friends. Lost my savings,considered uninsurable, I still work part time to get by, Have a few more health issues now, My brother says I can live with him if things get worse, I'm sure some of you relate, I sent for a book on migraines from neurologist ( iwon't mention name. There is a chapter that, says come people don't try hard enough to get off disability. Don't get the right treatment. Does he realize how much doctors charge? Test.s So many of us have spent thousands on doctors. I know a girl that overdosed after Mayo didn;t help her. Some of his diet would not work for me. Maybe some people could be helped by some of his theories' but it doesn't fit everyone. I may be too sensitive to all this, apologize for rambling. but some doctors in my opinipn don't get it..
I ended up on disability a Godsend, I was able to work, missing days, heard the insensitive comments from co worker, family and friends. Lost my savings,considered uninsurable, I still work part time to get by, Have a few more health issues now, My brother says I can live with him if things get worse, I'm sure some of you relate, I sent for a book on migraines from neurologist ( iwon't mention name. There is a chapter that, says come people don't try hard enough to get off disability. Don't get the right treatment. Does he realize how much doctors charge? Test.s So many of us have spent thousands on doctors. I know a girl that overdosed after Mayo didn;t help her. Some of his diet would not work for me. Maybe some people could be helped by some of his theories' but it doesn't fit everyone. I may be too sensitive to all this, apologize for rambling. but some doctors in my opinipn don't get it..
I finally saw a neurolgoist that specialized in migraines, he did a sleep study and that was okay, and he started me with Occiptal Neural Blocks (ONB) and they did help somewhat for a few years until I became allergic to the lidocaine. Now I have been on Botox for migaines for less than a year and that has worked even better than the ONBs.
I am on SSD for damages to my back and other medical ailments including the severe migraines. But I don't know how long the Botox for Migraines will work for me. So it's scary in a way.
It's hard for those without migraines to understand how painful they are. With not working, I don't have the money to seek other special treatments if the Botox fails. And you're right, some doctors don't get it.