I have read about occipital neuralgia but never experience it myself. My daughter has horrible migraines but not from that. I cannot offer advice but I can offer my support and prayers. Hopefully you will find an effective treatment for it.

First, what type of doctor diagnosed you with occipital neuralgia? What it a primary care or a headache specialist, or a neurologist? That could be one answer right there. Many doctors think they know a lot about headaches, but the truth is, they don't. Even neurologists are only trained in them....a little bit, but they are not up on the latest medications and research and what not. For a real proper diagnosis, I would only see a headache specialist. They really can be a life saver.

Let us know how things are going, and I'm sure you'll get answers soon.

Hi, I have just read your post and can really relate to how you feel, especially when you mentioned being betrayed by your body. To have pain that you have no idea where it comes from, why or how to treat it... its, soooo frustrating. Occipital neuralgia is and can be so painful. Migraine can be triggered by the nerve being sensitive or the nerve sensitivity can trigger migraine. Either way it is a vicious circle. I have Occipital, trigeminal and chronic severe migraine... all of it hurts... I can not tell one from the other at times - my point being - you are not alone, my body betrays me too.

Saying that, this body is the only one we are going to have in this world. Trust me when I say, 'it is best' to appreciate what your body is going through because arguing with it will only make matters worse. So... learn to love your body no matter how much it hurts. You will need to learn to be kind to yourself, learn to love what you have; appreciate what you can do and live one day at a time. Do not project your fear of pain into your future... after all, some people just wake up one day and have no more pain... others learn to live with it. This is all new to you... one step at a time - one day - one minute sometimes. Good days will happen.

Depression is linked to nerve pain sometimes. Surround yourself with people who understand. Support groups are very important. These nerve conditions are more about attitude of mind then treatment at times... There are effective treatments and new ones in the pipework but it takes time and perseverance... Keep your mind guarded ... positive attitude great but 'be real' and very kind to yourself.

Word of caution - I am a Christian. I have received loads of pray and while I do believe miracles happen, please be patient. God hears you in your pain and is there every step of the way but sometimes He provides you with strength instead of healing. No-one wants to be in pain. Remember, God can use everything for good for those who love Him. My faith has struggled a great deal in the past because I want my healing so much its untrue. When I did not receive what I wanted from God I turned my back... I didn't see what God had/has provided for me because I wanted something different. See how God supports you in your struggles... See who He sends to you... Reach out to the right people to help you.

I hope this has helped sweetheart?

God bless you Nikki x