Ok, so I'm going to say things about the 2 types of doctors that you are seeing for your migraines. First, just because someone is a good or "top" neurologist, doesn't mean they are a good headache specialist. Their knowledge only goes so far in terms of research, clinical trials, and medications. There have been many people on this board who thought they had great neurologists, who ultimately just ended up feeling hopeless because the doctor was limited, and eventually dropped them as patients. It happens all the time. And if your headaches suddenly took a turn for the worst, you really do need to think about changing to an actual HEADACHE SPECIALIST. They have more information at their fingertips, know about more and different drugs you could try to get these under control. That has to be your priority. I would highly recommend doing some research online to find a headache specialist/headache center/headache clinic in your area.

Second, I don't know if your chiropractor cracks your neck or not, but if they do, PLEASE STOP. People with migraine are at a greater risk of stroke then just the general population, and chiropractors can do so much damage to the blood vessels in your neck and really, really screw things up. That's one thing you don't want to happen.

In the long run, I wish I could give you advice on how to deal with social situations. My migraines were getting kind of bad in high school, but by the time I was in college, they were horrible. To this day, I have chronic daily migraines, and I barely make it to any social event unless it is quiet, in a cool space, and I have ALL of my medication with me.
But one place I will point you to...there is an online website called Migraine.com I love that website. You should subscribe to it. It's so motivational, and it really does give great advice on how to cope with migraine in just about every type of situation out there, and how others do it too. It is a great, great source of help and information.

Please keep us up to date on your situation.

I understand where you are coming from. My daughter has chronic migraines and it has affected her life tremendously. She started having chronic migraines in high school. She is now in college. She has not been able to get out and socialize too much because of her migraines. Most friends do not understand why she cannot up and go. She struggles with the same thing.

YvetteK gave you good advice. She always have good advice. I do not have anything else to add at this time. Remember there are many people suffering in silence like you. You are not alone. You are in my prayers.

I'm new here too! My migraines got worse in college (about 6 years ago) and I thought I was getting the help I needed from a "top ranked neurology department" in my state, until I went to grad school and found a true Headache Specialist. The team at this office has changed my life and has made it so that I can function (I still do hide my "baby" migraines) but the big ones are gone.

I agree with YvetteK and think a headache specialist is the way to go! Keep pushing for your own health!!

I feel so badly for you being so young. I was lucky in that mine did not get severe until I was around 30. I agree with Yvette that a Headache Specialist would probably be a good option at this point. I went to lots of neuros and cannot say that I felt like I made any headway at all with any of them. At least the headache specialist deals in nothing else but headaches and can maybe lead you down some paths which you haven't tried yet. And don't give up if the first one or even two don't seem like a good option. Like with any type of doctor, you will know when you've got the right one. Massage always helped me but insurance does not cover them and I can only afford so many, and not enough to make a huge difference. There are just no shortcuts with migraine. You have to just try everything you possibly can within reason and know when it is time to move on to something else.

Having been at this for over 20 years, believe me that I understand how discouraging it gets at times. I understand having to cancel appts and social events over and over til friends just don't ask you anymore. Just explain exactly what you go thru and the really good friends will understand.

As far as work goes. I kept a job for as long as I possibly could and then went on SSDI. Even kept my blue cross blue shield insurance til Obama care marketplace forced me to take Medicare by refusing to give me the discount making private insurance way too expensive.

Anyway, that's all I have. Bless your heart for having to deal with this monster at such a young and important age. Just keep getting up everyday and doing the best you can, find a good doctor and try everything possible. Something will work for you, it's just finding out what that is. Best of luck to you.

Cindy