I'm new to this.

I have had a migraine for 1 year now. The muscles became tight in my head  and neck and then the muscles just continued to become tight over 90% of my body. I had my first botox last month. It helped allot for about 2 weeks and now has mostly worn off. I'm suppose to get them every three months but am not scheduled for another on until the end of March. I would love to hear from others who are useing botox and get their feedback. I also have had 2 sets of steriod injections 40cc at a time given in numerous, like 25 or more, locations. Tageting the many many muscles knots I now have. It seems like a viscious cycle. The injections helped but then I just develop more and more trigger points. Since the muscles in my neck, head and shoulder are tight I have neuropathy down both arms. The first set of botox injections helped allot to loosen those muscles and the nueropathy went about 75% away. Now that botox is wearing off I am getting all of the neuropathy back. I'd really like to know if anyone else has had the tight muscles in their head spread down through the rest of their body like it has with me. I waited for several months to get into the neurologist. I know wish that he would have recoomened going to the pain doctor months and months ago and perhaps this could have at least been stoped from the neck down. I have had allot of painful medical problems and have been on disability for years but I have never experienced such pain as I do know. I'm on a high dose of Lyrica and I hate the side effects. I tried samples of Vimpat and it worked great but then the insurance company wouldn't cover it and I got stuck with Lyrica. Works well for pain but the side effects are horrible. Has anyone out there had any luck with Topamax???? My neurologist said that he didn't think it worked as well on nerve pain but that we could try it. He said most patients don't like it because it makes them so drowsy. I'm very discouraged, depressed and over whelmed. Any advise would be greatly appreciated. Thank you.