Migraine Headaches Support Group
Migraine is a neurological disease, of which the most common symptom is an intense and disabling episodic headache. Migraine headaches are usually characterized by severe pain on one or both sides of the head and are often accompanied by photophobia (hypersensitivity to light), phonophobia (hypersensitivity to sound) and nausea.
I wrote about this in my journal, too, but I think this issue required advice.
So I was down for two days with a migraine.
On Monday afternoon, I called my Neuro and left a message asking for a steriod pack to break the cycle.
On Tuesday afternoon, they called me back twice while I was finally mangeing to get some sleep. When i called them back, they were actually shirty with me about missing calls. I informed them that I has finally been able to sleep, which was good, and that she certainly could have called something in for me without needing to call me back.
They asked me a series of questions ("scale of 1-10, worst headache ever?) etc. to which I informed them that while I consider a 10 on the pain scale to be tearing your hair out and going to the ER, I don't call for help unless I am in pain severe enough to prevent me from living my life. I rated myself as having been between 6-8 for two days.
Finally, this morning, when the migraine has finally broken on its own, I recieve two perscriotions-something for pain I haven't tried yet, and what appears to be a different king of steriod.
I will of course take the steriod pack to make sure the cycle is in fact broken, but I needed it yesterday!
I wont apologize to anyone for having fallen asleep, I was in pain and that was a good thing! Why couldnt she just call something in for me? How do I get her to do this in future?
So I was down for two days with a migraine.
On Monday afternoon, I called my Neuro and left a message asking for a steriod pack to break the cycle.
On Tuesday afternoon, they called me back twice while I was finally mangeing to get some sleep. When i called them back, they were actually shirty with me about missing calls. I informed them that I has finally been able to sleep, which was good, and that she certainly could have called something in for me without needing to call me back.
They asked me a series of questions ("scale of 1-10, worst headache ever?) etc. to which I informed them that while I consider a 10 on the pain scale to be tearing your hair out and going to the ER, I don't call for help unless I am in pain severe enough to prevent me from living my life. I rated myself as having been between 6-8 for two days.
Finally, this morning, when the migraine has finally broken on its own, I recieve two perscriotions-something for pain I haven't tried yet, and what appears to be a different king of steriod.
I will of course take the steriod pack to make sure the cycle is in fact broken, but I needed it yesterday!
I wont apologize to anyone for having fallen asleep, I was in pain and that was a good thing! Why couldnt she just call something in for me? How do I get her to do this in future?
I had to have this conversation with my headache specialist. Sometimes these headaches hit me on a Friday, and if I had to call my neurologist, I'd have to wait until Monday. I would be screwed. I could have my sister call in the script because she is a physician's assistant, but I hate asking her, and I want my doctor to know every time I'm taking the steroid.
So, from what he told me, having a script on hand for steroids is not something he does, but I'm one of his worst patients, so I guess he made an exception.
I'm not sure how often you get the headaches that you need the steroids, but if you don't NEED to take them now, I wouldn't. I would hold on to them for the NEXT TIME you get that type of migraine. Mind you, still ask for the steroids next time also, but this way, you always have a dose on hand.
i now try to ALWAYS have a migraine med in my drawer in case i get a doozy!
last wk my dr gave me a free sample of "Cambia" its a powder you mix with a little water & drink right away. it worked wonders for me. i am going to ask for more next time, although its expensive as hell.
better to have it & not need it,,,than to need it & not have it.