I completely understand where you are at ~ I am at the same point in my life - the migraines....what kind are they? are they headaches or for me, I get to add the lovely fun of having an internal jugular blood clot to the mix which causes migraines on my left side, where it is located, ~ Plus i am now getting IVIg infusions monthly (iv immunogobulin) for myasthenia gravis which causes not just migraines but at times if I am lucky, aseptic meningitis. :)

The issue I am dealing with, is that I currently do not have a dr that wants to treat the migraines. I am scheduled to see a headache specialist, but can't get in until Sept. (called today though to see if I can get in sooner) I cannot take things like Imitrex due to when I did take things in that class before, I had what was referred to as a TIA and told by the hospital neuro and my neuro at the time to not take meds in that class again.

I was in the hospital 2 wks ago for 5 days b/c of a myasthenic crisis where I received 5 days of the IVIg - since getting out, I have been to the ER twice with migraine. The first ER dr was awesome and gave me the cocktail I needed to stop the cycle - the second was not nice at all and very reluctant to give me anything and only wanted to treat my nausea. I understand his position but I have my own as well. :/

The other issue I deal with is that I am not resistant to medications but it takes about twice what it takes for the typical person to treat me. So if you give the typical person 1mg dilaudid you gotta give me 2 and hope that does something for me. :) ANd that is where I am - needed dilauded for my migraines... :(

I k now this got long and I am sorry but it is just frustrating to live every day with migraine - I do feel your pain!

I also suffer from different types of headaches. Mostly migraines, but they can be caused from different things.
I feel I have a medication for every type. I try to diagnose the headache myself by where the pain starts and the first symptoms.
Since I also get nausea with headaches, I immediately take an anti-nausea pill. That's the first step.
I do not waste my time on Tylenol/Excedrine, and cannot tolerate Ibuprofin.
If the pain comes from my neck, I take Tramodol. If it's an ice-pick migraine just starting, then Fioricet. If it's more intense and fast, then Maxalt and sleep.
I also have an Injection of Imitrex, and Norco. If it is intense for 24 hours straight then I go to the ER for a cocktail of meds. (Happens about 2x's a year)
If it's sinus related I take a Sudafed or Mucinex, and a Norco.

After 8 years of suffering, and knowing my body really well, I have become very good at choosing the correct med.
The only thing I can't deal with is when the dizziness and spinning starts!

Are you on a preventative? That is also helpful for me, along with BOTOX injections every 3 months.

Good luck!

These are some helpful comments. I think the next course of action is the Botox injections. Just recently, I had a lumbar puncture & the Neurologist advised me that I have extra fluid around my brain causing pressure. When I went to the ER about 2 weeks ago for this migraine, they do give me the migraine cocktail & the headache goes away, but one of the ER doctors scared me even further by suggesting that I have idiopathic intercranial hypertension~that's the name of the extra fluid around the brain & they can see it when they do an eye exam. And when they did that in the ER, they said they didn't see any extra fluid, so I asked if I'm supposed to take this Lasik which was prescribed to me for the extra fluid. I was taking Diamox, but the side effects are horrible. I couldn't tolerate it. It causes both of my arms & hands to go numb for hours & I can't do anything, so they took me off of it.

Now, there's this other issue with my insurance, so now I'm at a standstill with my doctors & my insurance company until the matter is cleared up. I have to now get the DOI (department of Insurance) involved because the insurance company is doing some unethical practices, which is another headache of its own. The state of healthcare is in a crisis right now & so am I.

That combination I took, worked. I won't take Tylenol alone, I take it with a prescribed medication like Fioricet, Tizanidine, Dicoflenac Potassium, or Dichlor. Those are supposed to be my rescue medications. I don't take any preventives anymore because it wasn't working. And then I had a major set back with my blood pressure, so my PCP (primary care physician) took me off that medication & put me on two other blood pressure medications. I'm sorry this post is so long, but this issue is so serious, I need help & advice immediately!! These headaches keep coming back & there is no help. I get a headache at least 15-20 days out of any given month & I'm really that commercial living a "maybe" life!!!

I am hopeful that Botoxnis something that you will be able to do and will be of benefit to you!
I was to the point of it being the next step in my treatment plan and then I was dx with Myasthenia Gravis which is a neuro muscle disease and so Botox is not permitted.
The number of days I get migraines/headaches is ridiculous- at least 18-20. There has to be relief out therefor those infus out there who have this much difficulty.
Keep us updated!!
Hugs!

That should say Botox not Botoxnis-

I was getting 15-19 headaches per month for 3-4 months at a time.
I easily was approved for botox.
I had my first botox session in April 2015.
2nd is scheduled in Mid July.
Definitely if you are getting that many migraines, I would talk to your migraine specialist about this treatment.

I understand where you are and hope it improves!
Carol

There are so many problems right now that I can't even think clearly, but I'm supposed to be scheduled to see my Neurologist on July 8 as long as I can come up with $204 because I'm now considered a self pay patient. My chart had some really detailed information in it that the nurse who called me back couldn't explain anything to me, so she advised that I need to see my doctor to go over the results from the Lumbar puncture & the MRI that I had done in May. Initially, he said before these procedures were done that the next step may be Botox injections. But now I'm seriously nervous & concerned about these results & what my next steps may truly be. I know I just can't continue to live a "maybe" life like that commercial suffering from 15-20 headaches every single month & they are getting worse & more intense. Where is the help? Where are the people who really care & are NOT so concerned about that bottom line???