ENTs seem to be a breed that do not understand. Then again, this is one of those illnesses that they can't do anything about so we're pretty much left to fend for ourselves.

The two things for me that most impact the fullness and vertigo seem to be caffeine and salt. I still haven't figured salt out, since sometimes it makes me feel really good and sometimes it makes the room spin.

As for caffeine--once I detoxed for a few days (I just drank a lot of water) I really can feel the difference. But it comes back quick if I even have a little bit. I had a bad reaction last night just from a dark chocolate bar, so the best rule for caffeine seems to be NO caffeine.

Also, for coping mechanisms to get me through bad days, I use a microwavable heating pad for my neck (it calms the muscles which helps keep the dizziness down), Divertigo drops under my ears, and my last-ditch effort is a neck brace that seems to stop the spinning sensation enough for me to finish my day and get me home without dropping to the floor.

Update: I think I've found the most effective method of keeping the vertigo and nausea in check. A few months ago I had to take a Zyrtec for dust allergies when my office was being renovated. Whatever that affected, it almost completely negated the dizziness and sick feelings. I still have tinnitis and hearing loss, but man do I feel a lot better and more productive. The only problem is that the pill makes me sleepy, so I have to be strategic about when to take it.

I have Menieres, diagnosed by a neuro-otologist. Regular ENT's don't seem know how to deal with it, but a neuro-otoligists specializes in this rare syndrome.

Medically it's name is "Abnormal Endolympatic Hydrops". Has your ENT performed specialized tests, such as a ECOG/hearing ear test, it measures the abnormal fluids in the inner ear. There are lots of other tests to figure this out for you.

I went to Johns Hopkins looking for extra help but they sent me home without any further help.

I drink alot of water to reduce the daily dizziness. I fluxuate from good days to very bad days.

The only way to definitely diagnose Menieres is a biopsy of the inner ear. Some people opt to have their inner ear removed to test for this, but if the pathologist deems it's not Menieres, you are left without hearing in that affected ear. Also, it could also be Migraine Associated Vertigo, which I also have, even a seizure disorder, which I have.

If you opt to see a Neurologist, see a Headache Specialist not a general neurologist. The Headache Specialist could run an EEG to determine if you have a seizure disorder, sleep test, MRI and a variety of other tests to rule out more.

Dizziness doesn't have to come from the brain or inner ear.

I recommend seeing a neuro-otologist for help with this.

Have been living with daily dizziness of varying degrees since 2004. I am unable to work, exercise much and dealing with isolation now. It is a diagnosis that can help with disability payments, so you could look into that if you are diagnosed with this.

Good luck and keep us posted.