Meniere's Disease Support Group

Meniere's disease is a balance disorder of the inner ear. The symptoms of Meniere's are variable; not all sufferers experience the same symptoms. However, "classic Meniere's" is considered to comprise the following four symptoms: Periodic episodes of rotary vertigo, hearing loss, tinnitus, and a sensation of fullness or pressure in one or both ears.

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lesliehawley 01/11/2014

I saw my doctor for the 4th time in 3 months and also saw another well known neurotologist while home in Phoenix. Both doctors told my husband and I that I had run out of new options for improving my symptoms. After talking with my husband and parents for over 2 months we have decided that I am going to take the next step and have the vestibular nerve section (similar to labrynthectomy but not severing my hearing nerve). My doctor and his fellow neurologist who also do the surgery have time available in February. Now I wait for insurance approval and completing all pre-op requirements. I am a little numb and scared at the same time but I believe this is the best choice for me right now. Today the weather is a little yucky and I've been dealing with an attack since waking up. I so wish I could take my girls out or play ball with my boys. I recognize the risks but I feel like I am missing out on so much. Hope everyone is having a great weekend!!!

Olliedog 01/11/2014

best of luck and will prayer for you. So sorry about your attack and try to be positive - namaste.

kimeeib 01/11/2014

Sounds good if it dont mess ur hearing up any more I hope u do well and can do lots with the kids ...sucks when we want to be well and do lots but our bodys are makin us not enjoy life like most....

atlanta111 01/11/2014

wow who will be the neuro? I hope it's Dr Petr and that is his correct spelling. Doc G and I talked about the same surgeyr but I'm not there yet. I too had an attack of vertigo last night, the FL weather is kill us LOL. Hope you too have a good weekend and I wish you all the best.

deleted_user 01/12/2014

You're very brave. It's a huge decision, but it sounds as though you have thought it through fully and only you can know when it's time to move on to more aggressive treatment. I wish you the best possible outcome and am sending up prayers for you.

God bless,
Marlene

lesliehawley 01/13/2014

I am still numb about the surgery. I know when it gets closer I will definitely start to freak out! My husband and immediate family did discuss it for over 2 months. I think being sick most of Christmas was the final straw.
Thank you for the support it really, really does mean a lot to me!

Yep the neuro is Dr. Petr although I looked him up online and my insurance is not listed so I don't know what will happen! Dr. Greene said he has used him before with military having surgery so we will see!
Hope everyone is having a spin free day :)

georgiapeachy 02/09/2014

Leslie, this sounds like a great option for you! I know anxiety increases as the surgery date approaches, but try to hold it at bay. This surgery will mean no more vertigo for you! Just keep that thought uppermost in your mind. That's what I did before the laby surgery and I still say it all during rehab. Praying for you!

Blessings
Diann

deleted_user 02/09/2014

Good luck Leslie! Yes, it's very scary, but you're making an informed empowered decision with the support of the people who know and love you most. That's the very best kind. Just think of how wonderful it's going to be to know that you will NEVER have another MD attack again! Please keep us posted. You'll be in my thoughts and prayers. Jean Ann

lesliehawley 02/09/2014

Thanks ladies! I really appreciate your insight and am excited about your recoveries.
Leslie

deleted_user 02/09/2014

Best to you and prayers always!

God bless!

Rich

deleted_user 02/10/2014

Good luck I really hope everything goes well for you. My prayers are with you :)

Jessy18 03/07/2018

Hi, have you had this done? I had mine done 2 years ago next week. Was a long recovery but git through it. Today and for the past 3 months, dizziness has come back. :( :( I'm on short term disb now, making trips back to my doctor, failed a couple tests, one of them being that water test in the ear, was supposed to cause dizziness I guess and didn't. Now I have to go see a neurologist. He mentioned he's hoping the meniears didn't get to my other ear. :( I'm so bummed and scared. The Vertigo spells are awful and I get so sick. Guess we'll see what happens when I go back. But anyone experiencing all this too, I feel for you, it's so awful. :(

katrina39 03/08/2018

I fear for you having this surgery. I suffered with Menieres for years, and then I found Dr. Ray Drury, an Upper Cervical Care Doctor that changed my life. Our menieres is caused by our brain stem being out of alignment with our spine. Please go to UpperCervicalCare.com and read about this treatment before you have the surgery. I think you might want to try it before surgery. Good luck, Katrina

ilovesunshine 03/14/2018

I also did upper cervical care and it worked! I stopped having symptoms after the second treatment! Please look into it.

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