Meniere's Disease Support Group
Meniere's disease is a balance disorder of the inner ear. The symptoms of Meniere's are variable; not all sufferers experience the same symptoms. However, "classic Meniere's" is considered to comprise the following four symptoms: Periodic episodes of rotary vertigo, hearing loss, tinnitus, and a sensation of fullness or pressure in one or both ears.
Hi,
It has been awhile since I have post anything and was slient for a very long time. So much has happened and does not know where to start. Last year things got very crazy and I had a bad MD and vasvogal epsiode and was pulled out of work. I am still not working and has been out of the hopsital more this year than last year. I have muliply issues and keep hearing that I am too young. I tried Vestibular therapy and was discharged after the 5 week and told that they cannot put my health at risk. I fast out after the 5th week and had a bad MD attack. This happened this year. Last year, I was very sad and was trying to survive and could not understand what was happening to me. Because I started to experince weakness after an attack. But now the weakness is not associate with an MD attack. My ENT this week told me that he wants to do the Endolymphatic SAC surgery and I does not know of anyone who did it and work long term. If anyone did it and it work longer term please let me know? Also why is it when you tell ENT one thing they said something else. I wrote that I have ringing in both ears, he wrote ringing in one ears. Also, one ENT stated that I have MD in both ears and this new ENT frown on it and said MD in one ears. Even after the VNG stated? I want to stop seeing all ENT. So alot has been happening and I am a bit more calmer than last year. Anyways I am glad that I am back.
Welcome!!!
Do you ever asked https://vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/menieres-disease/
questions. They had helped me when I was told by ENT that I have to do shots etc. Maybe they can help you by giving you things to read.
A little over a year ago I suddenly lost hearing in my right ear. I went to an ENT who treated me with injections that didn’t work so he put me on a water pill (HCT). Since I did not have vertigo or tinnitus he was reluctant to diagnose it as Ménière’s disease but did mention it was a possibility and those symptoms may appear later.
Well a year later they did. My first episode was in May and lasted about 3 hours with severe vertigo and vomiting. He then confirmed the Ménière’s disease diagnosis. Then over the weekend I had another episode, again lasting about 3 hours with severe Vertigo & vomiting, but this time it came back again after about 10 hours and I ultimately ended up in the ER.
I find it difficult right now to explain to my family and friends the anxiety and fear I am experiencing so that’s why I searched for a support group and I’m very happy to have found this one.
I just sat in a support group and I agree with Stopthe support group is helpful. If there is no one in your area you can join in another one outside your area
Rose I am so sorry you have had so much going on. I will pray for you and pass along any info I get. I have somewhat of a medical background so I can understand some of this stuff and know when to dig deeper. Has anyone gone to Johns Hopkins for this ugly disease? I live close to Penn State Hershey Medical Center in PA and have an appointment with a ENT in Oct. for a second opinion and they will sometimes refer to Johns Hopkins.
I too am experiencing anxiety and panic - started psychotherapy about 3 weeks ago. Upped my Klonopin and Effexor, started guided meditations, and of course cry a lot.