Meniere's Disease Support Group

Meniere's disease is a balance disorder of the inner ear. The symptoms of Meniere's are variable; not all sufferers experience the same symptoms. However, "classic Meniere's" is considered to comprise the following four symptoms: Periodic episodes of rotary vertigo, hearing loss, tinnitus, and a sensation of fullness or pressure in one or both ears.

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claymom 02/18/2013

Just a thought to share today.....we all work so hard to keep our symptoms at bay and stay functional. It's a lot of pressure. I've been fighting my symptoms for a few weeks now, just barely staying functional with the help of valium and my strict diet. All of a sudden I woke up this morning and boom! I feel great! I don't know how long it will last. And I've examined everything to figure out why the change. Can't pinpoint it to anything. Which just makes me think we should be sure not to get down on ourselves, or blame ourselves, when we have our difficulties. This is a very real disease, and the management techniques we have are just that, management techniques. They are not cures. So if there is anyone else out there who tends to get obsessed with what they did wrong to cause a flare up...give yourself a break! Doesn't mean we shouldn't continue our efforts (of course!) but be kind to yourself. It's tough enough to have this disease without beating ourselves up. You are all terrific, and I really appreciate having you out there for support and all your great ideas :-)

deleted_user 02/18/2013

I am glad you feel better today. I will be starting my valium this weekend. I pray it does the job.

deleted_user 02/19/2013

So true claymom, sometimes we are our own worst enemies!! I'd like to share something that was sent to me that I have in front of me at all times.

MENIERE'S 10 COMMANDMENTS

1. THOU SHALT NOT BE PERFECT NOR EVEN TRY TO BE.
2. THOU SHALT NOT TRY TO BE ALL THINGS TO ALL PEOPLE.
3. THOU SHALT NOT LEAVE SOME THINGS UNDONE THAT .
OUGHT TO BE DONE.
4. THOU SHALT NOT SPREAD THYSELF TOO THIN.
5. THOU SHALT LEARN TO SAY NO.
6. THOU SHALT SCHEDULE TIME FOR THYSELF AND THY
SUPPORTIVE WORK.
7. THOU SHALT SWITCH OFF AND DO NOTHING...REGULARLY.
8. THOU SHALT BE BORING,UNTIDY, INELEGANT, AND
UNATTRACTIVE AT TIMES.
9. THOU SHALT NOT EVEN FEEL GUILTY.
10. THOU SHALT NOT BE THINE OWN WORST ENEMY BUT
THY BEST FRIEND.

God Bless

deleted_user 02/19/2013

Good thoughts chinanan, and KJT34 I hope you have a blessed day. It seems for me anyways than when I do feel good I start to do a bunch of things that involve bending over or working my knees, with the head in a new possition besides upright it isnt long before the dizzys and vertigo returns. For me its like my balance mechanisim got turned and now cant find its way back. Now days I dont do that.

God Bless

Rich

curlergirl 02/20/2013

Glad you are feeling better :)

JaneKW 02/20/2013

I,m with you claymom. It took me 3 weeks after the last drop attack for that wonderful morning. When that happens, I pretend that I am cured (continue low salt and meds though) and just do fun, spontaneous things. After all, I weren't to bed one night and woke up deaf in one ear, so why should I think I can't get better just as suddenly! I say enjoy when when you can.

deleted_user 02/20/2013

SO TRUE !!! WE GO THREW HELL WITH THIS DISEASE , AND THERE DEFINATELY IS NO RHYME OR REASON AS TO WHAT CAUSES THE SYMPTOMS ,OR WHAT MAKES US FEEL BETTER SOME DAYS . ON THE FEW GOOD DAYS I HAVE I TRY TO ENJOY IT AND GET AS MUCH DONE AS I CAN!!!!

deleted_user 02/20/2013

Claymom, it's wonderful to hear that you're getting some relief from your symptoms! I have heard that some people have a sort of remission from time. Wish we could all have that!

Rich, I know exactly what you mean about bending, etc. bringing on the vertigo. I can't even reach for anything in the cabinets without getting a little spin. Only the grace of God (and a very understanding boss and co-workers) has allowed me to keep my job.

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