Hi Rose,
So sorry for your frustrations on top of your MD. It is hard to get help that is needed, or even understanding sometimes.
Yes, stress makes it bad. So start your fight there. Find some stress reducing strategies that you can use for short times or long times. Pamper yourself with good diet, exercise, sleep!
Maybe if you gave info for what part of the country you live, you might get a response from someone who knows a good doctor in your area.
And fight. AFTER you get enough sleep, etc. to help you.

What are you doing for your MD now?

Yes, the mood gets crazy. As does the head, the thoughts, the balance, the vision, the hearing..... As you find your triggers that make you feel worse, you can alter your lifestyle to avoid some of your symptoms and overall you can cope. Give yourself time to understand all of this. And keep coming back here for support , encouragement, and maybe some answers.
My biggest help with stress is my prayer life. God's blessings.

I'm so sorry to hear your frustration. I wish I had advise. It took a while for my diagnosis and I just hung in there, even though it was frustrating. Unfortunately, I have no words of wisdom or advice.

I am praying you can find answers and healing, or peace to live with illness. I have been able to come to a state of mind, I don't worry about the vertigo and hearing loss, and prepare for the possibility. I am very fortunate to not have attacks on a regular basis, I can go for many months without an episode, and then have a few in a cluster, so it is probably easier for me, not dealing with it on a daily basis.

Im so sorry I feel u sometimes everything is just to much im sure we have all been there my first ent was so bad and told me inless I was spinning I wasnt dizzy what a shit hole doc but my brain doc sent me to a ent surgeon and disease specialist who after a few visits new and told me it was md but I felt low and it took about a year before I started to get answers I hope it all works out docs that dont care or listen shouldnt be n this field

DON"T GIVE UP ! you just gotta keep trying things till you find what works we all know what a pain in the ass it can be but those of us who have made great strides in dealing with this and found a happy medium are only there because we never gave up and would not settle for a bullshit answer .Do your research on md and try try again till something works out for you read past post and try things we have all recommended and if you are near the Philadelphia Pennsylvania area contact Jefferson hospital they have an excellent ent program with dr.s who specialize in treating md and other complicated inner ear disorders .Good luck and God bless.

do not give up and keep on fighting! i went thru three different ENT before diagnosed with MD in 2012 after five year between random vertigo episode and tinnitus.

Hello Rose, So sorry you are feeling so bad. Passing through the stage you're at right now is extremely hard. Sadly it is a stage that most, if not all, of us have had to face. Right now you are unable to see the good ahead because of the bad. There are better times ahead but first you must take one day at a time and sort out the now problems. MD can knock you for a sixer at first but you can fight back and grow stronger. You can do it, and along the way you will find an inner strength you never knew you had.
Peace to you. Daph

Thanks. My MD said no one can do anything for me medically. Thanks for the encouraging words. I need that and to know that others went through what I am going through now. When I pray I know that God is there. Maybe sleep is the best thing I need now apart from God. Oh, I live in Ft Lauderdale, FL.
It is a comfort to know that others have being through it and is stronger.

try goggle to find treatment treatment centers for balance disorders in your area also try Wikipedia under balance disorders to learn more about what you are up against the more you learn the better you will understand what is happening and you can recognize the early on set of an attack and take steps to prevent or reduce the severity of the attacks.believe me I have read so much on this I think I could take the teat and become board certified just don't give up your fight some day some how you will find your happy spot good luck and god bless and remember we are all here for you just a few keystrokes away.

No one can do anything for you?
Definitely do not give up!!!!

Today ways weird I was at one of my job and a guy walked in and wanted to practice where we were. It was so loud that I heard my right ears make a popping sound which hurts. I started to feel light headiness/dizzy plus nausea. I told my supervisor but she joke it off by saying am already deaf. But one of my co worker notice the changes in me and that I was not feeling well. Did this ever happened to any one else. I had my meds with me and took one and hours after I feel better.

Rose

Yes, what you just described during your work day is the regular routine we all go through. This condition is very cruel and can really mess with your mental state of mind. It is not uncommon down the road to develop some depression out of this rollercoaster ride called Meniere's disease. Just take a deep breath, try to slow it down, take your meds and do the best you can.

I feel for you, this is a tough way to live.

God bless always!

Rich

Hi Rose,
I understand your frustration!! It seems like no one knows that
much about MD. I am still waiting on appointments for my hearing loss ( both ears) you have to do your own research, and know all that is available out there! I am using the Meniett devise with positive results. I finally don't have to worry about going out and be afraid of starting a bout of vertigo and vomiting. Vertigo is under control with meds now and vomiting is gone...I am so relieved as I fought to get the devise. It's not cheap but it sure helps!! Don't give up someone WILL listen to you!!
PJ

You have to be harsh with pcp and specialists. You are your own advocate. I am a huge believer due to experience, that many physicians do not have the knowledge that people like you and I have regarding our own symptoms. I had a neuro tell me that my *problem* was psychiatric. Now I know it is MENIERES. Do not be intimidated by your doctors and/or the lazy staff that doesn't want to do the paperwork. They MUST refer you to the doctor of YOUR choice. I went to 5 specialists before I was finally diagnosed.
As for your hearing, I am still trying to research that aspect. It is a very debilitating disease. I am trying to find out about stopping the hearing loss, but I can't seem to start a discussion out here. Maybe you can help. H

In response to your latest post about your boss' indifference and discriminitary remark!, i wish I could tell U that ADA or anyone fights for us but I haven't found that to be true:( We are supposed to be "accomodated" but good luck with that. And if U get involved with Workers comp, that's a whole other headache as I've found out...First because I had a WC injury, my regular Doctors don't want to treat me so the ENT blamed it on the blood pressure so my meniere's got overlooked for about a year tho I was seeing many doctors regularly, it took a good audiologist to diagnose it...Now 7 years later, and tho I thought my attorney added the meniere's disease to my claim, I find out from the New attorney she dumped me on, that neither of them did it!! (Not sure if I'll even proceed with it now as this attorney won't communicate by email no matter how much I tell him how hard it is for me to be on the phone:(...Don't worry, if I do and win that case, I'll let u all know:)
I"m glad U are seeing a neuro as I just saw that people are and since I had 4 concussion like injuries and neck problems. I'm going to check in2 this...When U are losing your hearing and dealing with all the symptoms of meniere's, it's hard to keep fighting for your rights as we don't need any more stress.
Do u have a copy of the meniere's disease booklet that a good doctor should give U? I find taking any printed info with me when I go to a doctor's office helps. In fact, give them to everyone U can, including your boss! i also have had good luck with taking ginger capsules first thing out of bed.
With the losing your hearing, it's like any loss and we have to go thru the 5 stages of grief. Having a good empathetic therapist helps. I will add U to my prayer list...I do hope if you can use a cell phone that you keep it away from ur ear?!

How do you help to stop hearing lost? Also, what does a cell phone does to my ear? I have a cell phone. Can hearing lost be stop? My meds is only as needed. Therefore I only take it when I am sick. I take Valium.