Meniere's Disease Support Group
Meniere's disease is a balance disorder of the inner ear. The symptoms of Meniere's are variable; not all sufferers experience the same symptoms. However, "classic Meniere's" is considered to comprise the following four symptoms: Periodic episodes of rotary vertigo, hearing loss, tinnitus, and a sensation of fullness or pressure in one or both ears.
hi everyone,just a bit of a rant....ive was unilateral for 5 years..then in the last 2 years ive gone bilateral...7 years of blooming hell...i have all the usual symptoms but vertigo is the worst for me...i have it 24/7...even on what i call my good days,its still there just at a slower pace...but my question is..does anybody else have trouble with walking..since going bilateral and after a massive attack my walking abilities are non existent....i can only walk for about 10 to 12 minutes and then my vertigo gets worse and worse..i feel like the ground is trying to escape from under me and im gonna fall..i get so disoriented....indoors ive started in the last couple of months to do my house work and need to rest in between,i cant hoover though..but walking is unbearable..ive basically stopped going places,if i do go out i have to get a taxi or my husband has to push me in my wheel chair...im just at my wits end..keep crying out of frustration...sorry for the rant but any comments i will will appreciate. thnk u xx
I have meniers but just had a whole slew of testing done and discovered that it is my vestibular nerve that is only working 5%.
I was in phycial therapy and when I tried to walk that yellow line they have I was so shocked that I couldn't walk it. I laughed and said oh boy I hope I never get pulled over and have to walk a straight line cuz it would look like I am drunk and I don't drink!!
At least I tell myself as I am in a full blown attack I get paid to feel this horrible. I don't have vertigo 24/7 like yourself and cant imagaine feeling like this all the time. I am sorry you are going through such hell. I lost my hearing to this meniers and wear 2 hearing aids but they don't help much since every thing I hear is garbled again because of my profound hearing loss and my meniers they say I am handicapped and though I receive a monthly check for my disability I would have rather kept on working but it just isn't possible. wishing you well
I have had to hide inside my house for months because I could not walk outside. I have MD in my left ear and have applied for SSD because as a lawyer I cannot work with vertigo and not being able to drive. Initially I did not test positive for BVVP but 15 months later they put me in the 360 multi axel positional chair and I almost lost it when they flipped me in 4 positions and i lost my lunch. My boy friend was in the room and they let him warch the screen which was very helpful, because the nuse could show him and he could see when the vertigo hit because my eyes would respond with a rapid eye movement . The crystals have been moved and my vertigo is better. I'm still suffering from other symtoms but I can now walk outside and with all the other changes I've made to my life I see progress. Stay positive, that is the key. If you can get the vertigo under control vestibular rehabilitation really helps it helps me with my balance. Or unfortunately you might have to look into vestibular nerve surgery.
Try to hang in there. I eventually stopped crying and started meditatiing. Crying added stress which made my symptoms worse and triggered attacks. Take care.