O I UNDERSTAND EVERY DAY I PRAY I GET THOUGH MY EAR IS FULL AND RINGING AND I LIVE ON XANX TO GET THROUGH, I PRAY EVER NIGHT PLEASE LORD TAKE THIS A WAY, I CAN NOT BE AROUND MY GRAND KIDS MUCH FOR THE NOISE DRIVE ME CRAZY, I DO HAVE A FEW BETTER DAYS AND I THANK GOD, BUT TO THINK OF LIVING MY LIFE OUT LIKE THIS IS HARD, OR WHAT LIFE I HAVE, I HAVE FIBRO AND MENIERE'S AND MIGRAINES AND IBS AND ACID REFLUX ,BUT THIS EAR THING IS THE WORSE, YOU NOT ALONE I UNDERSTAND, HUGS SHIRLEY

Leslie

I think the best advice I have gotten from this for forum from several folks is to find a way to keep on living and try as much as you can to forget the condition. I know this is next to impossable in reality but once you decide to just try to go on with things it seems to be somewhat better. I think one condition that holds hands with meniere's would be various kinds of mental illnesses, in particular depression. It is quite a steep request to be asked to try to live somewhat normal now and not get distroyed or overtaken by depression. I say, seek help if you need to talk but better than that, try to have several close friends whom you can explain your condition to and then make arangements to go out with these people from time to time. I do not go anywhere without supervision yet I have some routines now that put me in the real world, outside of that I just live one day at a time.

Allways praying for you Leslie!!!

Rich

It is good to talk and have others "that understand" or want to listen is very helpful. Choose your timing and listeners carefully. I haven't always been able to walk through this so easily and still don't think of myself as walking through it on some days but it is possible to live again. My docs have suggested that I "share" with others because they think I can help others since I seem to be walking through the illness and no longer stuck in it mentally.
There was definitely a "dark time" when I couldn't even stand to be around myself because as we all know how awful we feel physically with this illness. And I thought if I couldn't stand to be around myself then imagine how my family and friends must feel to be around me. This illness was not only controlling me but also them it was like an octopus with tentacles for each and every person that I came in contact with by my behavior. And the very thought of that hurt my heart. I would never intentionally want to hurt someone else especially those we love. And it's bad enough for me to have this illness yet alone for it to impact them. How awful!
So I began to think about what did I have within my control that needed immediate attention and that was - my thoughts; my thoughts then contributed to my behavior and my behavior contributed to my attitude. I began to make positive lifestyle changes with what was in my control with something that seemed so much bigger than me I needed to replace every negative bad thought with a good hopeful thought. And every time I became aware of talking about my illness or saying something negative to or about someone because of MY pain to my family and friends I stopped immediately and tried to talk about them instead. Love them - No more selfishness. It was like eating an elephant one bite at a time - and eventually I noticed family started to want to spend with me again. And bad behaviors seemed to disappear. It was not so hard to struggle to get by; life seemed enjoyable again even though I still did and still do "feel" not so good physically daily. I'm not saying this was easy or that the change happened overnight but eventually it did happen. Sorry this is so long and I hope it helps someone. What's in a person's heart comes out their mouth! God Bless!

Wow, that is quite the task. I'm so glad you shared. I too, don't like to talk about how I feel with family. I so much appreciate it when they ask first. That is one of the reasons I love this group of people. Understanding comes first here. No explanations necessary. Total acceptance. Thanks to all of you!
Leslie, my prayers are continuing for your strength and peace of mind.
Sleep well.

It's a new day and trying to have an attitude adjustment :) The banquet was worth it! My daughter got the trophy for her team for working the hardest and having the most dedication. She does love cheerleading! I had 1 short lived moment that the coach got me some water and then I felt better. I think there were 500 kids there so I think we hearing loss was a blessing. I did get jumpy at my wonderful husband who was complaining about being tired. I barked at him I wish I was just tired. He was very sweet and understanding thankfully. I think I just needed a day to be sad. I appreciate all your guys thoughts and suggestions!
Wishing you all a wonderful week!!!
Leslie

Great post Ireland713, you hit it right on the head! I think Shirley is the one who go my mind turned around about this condition. I will not let this thing beat every ounce out of my life. It all starts with being mentaly prepaired to take on the challenges of the day and trying your best and then excepting if it wasn't 100%.

I call it "falling forward!"

Way to go Leslie, stay strong there girl!!

Your buddy

Rich