I posted a while ago and wanted to update everyone on my throat, it is the most bothersome sysmptom for me. I went to an ear nose and throat specialist in July, she put a tube down my throat and said all good up to the vocal cords go see a gastroenterologist. I went to see her today, she will do the same but down to my stomach. She says it sounds more like Sjogrens than like acid reflux. Anyone here have it in addition to mctd? I also saw my rheumy a couple of weeks ago, I also saw her in August. My mother in law was diagnosed with lung cancer at the beginning of July and passed away at the end of July. Her wish was to be burried overseas and I wasn't sure if I could even travel but there was no issues, and while I was there I felt great!! We were there just over two weeks and in all honesty even with everything that was going on I don't remember the last time I felt that good. But on the plane on the way back it all started again. The throat pain, the muscle pain, the ears were so painful that I kept my head down on the tray the entire ride. I've never had a worse experience on a plane. I'm back to being anemic so I'm now back to eating calf liver.
Hope to hear from some of you soon.
Just checking in here, been off for a long time-- basically, I mostly use a different computer, which remembers the password for this site, but I cannot remember it myself, and thus cannot use my primary computer.Muscle and joint pain, and fatigue, was worse over the summer, and I did have to scale back swimming and body boarding in September. I didn't do anything about it because I was too...
Hello everyone,Its been a while since I've logged on. I must say, this year has been one hell of a roller coaster, for myself and all of us. I hope the holidays aren't causing any flare ups.I am very scare at the moment. 3 of my doctors are concerned I have pulminary hypertention... I just turned 22, and I was diagnosed with MCTD right after my 21st birthday. Which means if I do have...