Don't know what causes it, but I do get it occassionally. So bad that I have threatened to scratch witha hairbrush just to get some relief. I've been told everything from anxiety to allergies to stress. Wish I could help with a better answer, but at least you know you aren't alone!
-Kate

I posted a bunch of stuff this morning and have logged on to find all of it gone to cyberspace. Oh, well.
So, to your question about itching. Yes, there are times I itch so bad it drives me nuts! It starts on the front of my throat and in a few days is all over. I get those bumps. Then it goes away for what ever reason it appeared! I have switched shampoos, soap, detergent. Used various lotions and cortisone cream.
I have not been able to figure out the cause. It comes and goes at will.
As Kate says, wish I could help you better, but at least you know you are not alone!
Mary Ann

Thank you ladies. I can't even describe it to others. It makes no sense but when it hits, it hits hard and my children no better than anyone what I'm going throuuugh. Thanks for letting me know I'm not crazy! I

My experience with itching is toxins trying to escape through my skin. I may not stop it, by exfoliation has helped me a great deal. When you shower/bathe, use something at least as rough as a loufa, rougher is better. I have a rag I got at walmart that is like a washcloth on one side and a scratch pad on the other. I scrub my wrists and ankles with vigorous strokes and put lotion on while still a bit damp. Give it a try, That itch feels like it is so deep you'll never touch it. We all know. Best of luck.

are you taking any meds shortly before the itching starts?I also itch alot but at ramdom times and it is better since I have cut way down on prednisone which I thought helped with itching but I guess high doses for along period of time cause you to itch,Cindy

I get that and the "pricklies." I get the goose bumps and chills when I am not cold. It is all so odd!

Gabrielle

I havent changed my meds in a long time. So, it isnt that.
I also get the pricklies! Have since I was a kid. My sisters and friends thought it was wierd. I will get a little tickle on my head or face or a feeling of pressure, like a finger pushing on the skin lightly. Then, on another part of my body, I get an intense itching or sharp pain in a spot on another part of my body. This is sudden. Its not like it happens with a slow build up. I can scratch or slap the other part of my body with no success. But if I find the "starting Place" on my head and gently scratch or rub it, all the symptoms go away. Go figure.
Mary Ann

I get weird itches occasionally, but what bugs me to hell is when I get weird "sore" spots on my skin going down to the muscle. I just blame it on inflammation flare ups. I guess it could make sense too that we get little "allergic" reactions to lotions/detergents/etc, what do you thin k?

Oh my gosh, just logging on to see about the itching and was excited to see your post (how sad is that?). I itch insanely right aft getting out of the shower. My doc checked my liver function, which is fine. Another doc suggested standing in a cold shower for a couple of minutes before I get out, but that only helps if the itching is pretty mild that day. Lotion doesn't help - but I like the idea of a loofa, I'm going to get one of those and try it. Driving me crazy!!

I had Steven-Johnsons Syndrome (another rare and serious disorder) and the itching was worse than the pain. The rash covered my entire body for months. My doctor had me on steroids and a steroid cream.

I take all my meds in the morning and the itching usually starts around 8pm at night. Its happens both when I am on Prednisone and when I've been off of it. I can't seem to find any rhyme or reason to it. I can go for a week with nothing, then it hits for me for a few nights in a row.

Rescuemama, I know how you feel! I felt that way when finding out others had the excessive sweating!