MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Hello,
I was diagnosed 2 weeks ago. I saw my doc on Friday and asked her if it's just in my mind that since the diagnosis I've had extreme fatigue that seems to get worse every day, swelling, pain, and tingling in my hands, no appetite, and I've missed several nights of sleep. (Usually miss a night about once a month).
She said no, that the stress of learning about it probably is the reason. I've also had work stressors so much that I'm leaving to open my own business.
Was just wondering if this happened to anyone else. Is this what is considered a flare? What do you do in a flare?
She started me on supplements, hormone replacement (I'm 56), and Low Dose Naltrexone. I was already taking a statin for high cholesterol. I have had some minor heart blockage for a few years.
Once I read about the symptoms I realized they started in my early 20's. Asked the doctor and she said yes, it's been brewing for along time. So it'll be a long time to feel better.
Crap.
Thanks for listening.
Mary ann
It can be overwhelming at first. Especially when you realize your symptoms have been around long before diagnosis. Rest when you can, exercise when you can. Remember to breathe and enjoy life as much as possible.
You ate not alone.
I'm sorry you are having to go through this also but thank you so much for reaching out and for your advice and support.
I have been taking my meds, I quit my high stress job (last day on 5/31), starting to cut sugar. Started hormones for the 1st time at age 56. Have slept about 12 hours/day this week.
Today was a good day!