I was diagnosed 2 weeks ago. I saw my doc on Friday and asked her if it's just in my mind that since the diagnosis I've had extreme fatigue that seems to get worse every day, swelling, pain, and tingling in my hands, no appetite, and I've missed several nights of sleep. (Usually miss a night about once a month).
She said no, that the stress of learning about it probably is the reason. I've also had work stressors so much that I'm leaving to open my own business.
Was just wondering if this happened to anyone else. Is this what is considered a flare? What do you do in a flare?
She started me on supplements, hormone replacement (I'm 56), and Low Dose Naltrexone. I was already taking a statin for high cholesterol. I have had some minor heart blockage for a few years.
Once I read about the symptoms I realized they started in my early 20's. Asked the doctor and she said yes, it's been brewing for along time. So it'll be a long time to feel better.
Thanks for listening.
Scoring a 71 with normal being less than 20 units.71 is a moderate to strong positive, 80 is strong.Tricky test to read, will explain later.
Well, my hair is again falling out. I had some success in keeping it while on Plaquenil and Medrol. I have been off of them for awhile, but on tons of vitamins up until a few months ago when I developed the poikiloderma and they had me go off all my OTC meds. I went back on the vitamin D lately since I was starting to hurt all over. This morning, I woke up to generalized pain. It has been...