MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
It's another beautiful day,sunny and much cooler, it will only be in the 70's today.I love it ! My pain is at a "all time Low", i'am very happy about that.
Hugs :)
My thoughts are with Josee, Has anyone heard from her?
I hope everyone has a manageable day!
kristin
Beautiful weather her in WV. The sun finally came out. It's been looking like it's going to rain for 2 days...nothing yet. Much cooler...that's a nice change. I may even be able to get a run in...outside:)
Not too much to report. Feeling a little better about things. Just having this move hanging over my head...:( Eh, before I know it, it'll be all done and i'll be missing my hubby...
Well guys, have a wonderful day:)
Had a Flipped out day yesterday when i woke with a dime size rash on my left cheek... gave me an excuse to go see my FP.
Im back in the swing of school activities, hope i can hang on :)
-gayla
Just had to say hi.....how is the rash? I hope it is better today. I can so relate to the "flipped out" day.....weird things come up here, too -- an excessive hairloss day, a weird rash -- ugh - I am so trying to learn to roll with it a little better, but man, it's tough! Good for you that you are back :) -- and in the swing of school activities, I think you said you have 2 kids? I know things get sooo busy. Hope you are hangin' in and feeling good!
Have a good night everyone......
I wish I could add to the happier posts today, but I am not doing so good. Emotionally I am still great, but I am really in pain, and not feeling well. Seems to have started a few weeks ago, but so many things at once hitting me now. I am really struggling to move my neck as it is incredibly stiff and sore with all glands in neck & throat swollen it seems. The loss of appetite is worrying me as I am noticing rapid weightloss now. Weird stuff coming out of weird places, migraines still there, leg muscle pain back with a vengeance, weakness back, nausea hits me not eveyday, but most days and usually in the AM, strong abdominal pains, bloating... etc.. etc..
I still haven't found a new Dr, and knwwo I need to get one pretty soon, and get started on the Quensyl (Plaquenil)... I even missed a day at the gym this morning, just could NOT do it, instead dropped my son off at school, came home and slept 4 hrs. Ugh..
Still smiling, but also p*ssed off that I am feeling so crappy....
Hugs & happiness to each of you, wishing you fantastic days ahead :) xox
Nice cool day. Feels good. No rain either. I want some more of these days!
Mary Ann
Mary Ann