MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Good afternoon! Our group seems to be dropping out! Not much activity lately.
Going to a wedding reception today. Should be fun! Used to push the bride in a stroller!
The band competition yesterday was fun but too much sun and concrete benches! My daughters band got all 1's which is the highest score and won quite a few trophies.
Planning our church Christmas concert. Last years was too long! We sang every Christmas song ever written! All were exausted including the audience. One lady apologised "I love the singing but I cannot sit this long" and she went home. So I am trying to help with the planning this year. It is hard to cut out someones "favorite" song.
Have a great day!
Mary Ann
P.S. Tomorrow stage 2 of the foundation work starts!
Going to a wedding reception today. Should be fun! Used to push the bride in a stroller!
The band competition yesterday was fun but too much sun and concrete benches! My daughters band got all 1's which is the highest score and won quite a few trophies.
Planning our church Christmas concert. Last years was too long! We sang every Christmas song ever written! All were exausted including the audience. One lady apologised "I love the singing but I cannot sit this long" and she went home. So I am trying to help with the planning this year. It is hard to cut out someones "favorite" song.
Have a great day!
Mary Ann
P.S. Tomorrow stage 2 of the foundation work starts!
I was wondering if you had taken a cushion to sit on that concrete with.. wish you had! Glad you enjoyed it but sorry you suffered because of it. As for all that singing.. wow... would be a bit much for me too! lol GOOD LUCK with stage 2 of the foundation work!!!!
As for me, doing ok.. continuing to take pain relief as it is truly helping. I usually take nothing, but am glad I am doing something to help it. The exhaustion and pain in my leg muscles is really awful... that is what I seem to be hit hardest with today, and the bad headaches.
In general though, can't really complain too much! Spent the day with a very bored little boy, playing card games etc.. (we are keeping him away from people in the leadup to the surgery, in case he gets ill). Poor kid, don't know how he will handle the week after surgery!
Hugs & happiness to you all!! xox
Sorry you are having so much pain. Do you have polymyositis?
My daughter had reconstructive surgery on her foot last summer. Looong recovery. After the initial few days, she was so bored. Could not do anything! Was in a wheelchair for 2 weeks and our house is not compatable, so someone had to take her everywhere. She was 15 and too big to carry although I did have to transfer her to the wheelchair and into the tub and to the toilet, ect. Hope your sons surgery wont be too hard on you.
Mary Ann