MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Good morning all!
Well, My house "fix" made the local paper. the contractor wrote it up. He does that to drum up buisness. And news tends to be slow around here. Found out yesterday that everyone thinks we are building an apartment on the lot below our house. All the contractor equipment that is parked down there flamed the rumor mill. Told the person that reported to me that it was just a rumor. He told me Id better check on it as it came from a reliable source. Well, we own that lot, so I guess I would know.
Meantime, the fire station next door is planning an addition and want to put a road for access in front of my house, on my lot. Sheese! Always something! Another zoning meeting to go to! Have to fight it! I put too much money in this house to leave now.
Also, my lightening bug escapades put me on Google and I got a $10 bonus check for all the bugs I collected last summer. Seems I was first in town and 3rd in the county. So I got $10 extra! As I said, news is slow around here.
Of course, I was going to the mall on Wed and decided not to go at the last min, and there was a shooting there at the same time I would have been there. Glad I didnt go!
Joints are so sore and feet too. Think I am flaring up again. I will never get off this Medrol. Every time I wean even a little bit, I flare up. Of course it doesnt help that I am dealing with all the kids activities again. So exausting.
Off to work I go! Everyone have a great day!
Mary Ann
Well, My house "fix" made the local paper. the contractor wrote it up. He does that to drum up buisness. And news tends to be slow around here. Found out yesterday that everyone thinks we are building an apartment on the lot below our house. All the contractor equipment that is parked down there flamed the rumor mill. Told the person that reported to me that it was just a rumor. He told me Id better check on it as it came from a reliable source. Well, we own that lot, so I guess I would know.
Meantime, the fire station next door is planning an addition and want to put a road for access in front of my house, on my lot. Sheese! Always something! Another zoning meeting to go to! Have to fight it! I put too much money in this house to leave now.
Also, my lightening bug escapades put me on Google and I got a $10 bonus check for all the bugs I collected last summer. Seems I was first in town and 3rd in the county. So I got $10 extra! As I said, news is slow around here.
Of course, I was going to the mall on Wed and decided not to go at the last min, and there was a shooting there at the same time I would have been there. Glad I didnt go!
Joints are so sore and feet too. Think I am flaring up again. I will never get off this Medrol. Every time I wean even a little bit, I flare up. Of course it doesnt help that I am dealing with all the kids activities again. So exausting.
Off to work I go! Everyone have a great day!
Mary Ann
MT, I gotta say, it just doesn't sound that dull where you live! You keep saying that news is slow... but jacking up the house, the lightning bug thing... it's great when life is full of offbeat adventures! Sorry you are sore and not having much luck getting off the Medrol.
Dallas, hang in there... some days, you just have to take that extra dose, I haven't had a double dose day in a long time, but I remember them... I've been able to skip more days, so I am lucky.
After job hunting on Wednesday, I did get down to the beach at 5:30 or so... the water looked glassy from the parking lot... but then, when I got to the high water mark, it looked like I was in Hawaii. Incredible green barrels of surf breaking north to south, about three to four feet high, best conditions I've ever seen. I got at least a dozen rides, shot the curl twice, which I've never done before... these were incredible, 15-second rides.
Towards the end, the surf deteriorated... and I got tired very, very quickly from walking/paddling out again and again and diving under four foot waves. I went as deep as I could for as long as I could, but I got rolled once pretty bad, caught one last wave and got out.
Well, yesterday I barely got out of bed-- though I did get a lot of job-hunting done! Man, was I sore, and zero energy, nada, nothing. Combination of sun, exercise, and pollution, probably. When I walked the dog, my neighbor actually stopped me and asked me if I was all right. Finally at 5:00 I got myself to the bank, had some pain meds at 8:00, and then was able to shop and cook dinner.
Exercise is good for the soul, but it sure can be hard on the body! I seem to have recovered today... I can understand that weight work would make me sore, but I think swimming every day is probably too much. Melissa, do you get sore just from aerobic exercise as well? I've only been taking one or two days off...
Best,
--Catalyzt