MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Well, i went to wal-mart(yesterday) to buy a new pair of shoe/sandles,One hour of shopping and when i got home i had to go to bed,and my daughter was so mad at me and called me lazy....grrrrrrrr.It's very upsetting, i thought she understood this chronic Fatigue!!
The walking,decision making and the fluorescent lighting, drains me of all engery.Sorry for venting on here.Just wondering if anyone can relate? OH,well,i guees it does'nt matter,this is another day,i'am having my normal aches and pains.I like the phrase that is use on here,
""I feel like crap"", i usually say my 'rotten self'.I can never say i feel good or great.Can you? and really mean it?
Again, sorry for venting.Hugs to all,Lisa
~ Donna
and my daughter knowns all about this lupus/mctd thing..I guess she was just having a bad day herself!!!The dr thinks now she might have it too!!!
Where is EVERYONE TODAY??????????
Tuesday, I cut on a shrub for a half hour, came in and slept for an hour. Went back out and cut for a half hour, came in and slept for a Half hour. Some days are like that. Never get much done anymore.
Helped at the Clothing Closet for 3 hours today. No air conditioning. Cat can relate to that! Anyway, got sick, almost passed out and got a woppin headache. Came home and slept for an hour. Feel better but tired. I want my life back!!!!!
Fluorescent lights-- the conventional kind-- are bad, yes. The "daylight color temperature" kind are better.
Wow... I am totally energy-free today. Extremely foggy thinking... I would not get behind the wheel of a motor vehicle today, no way. I am lying down with the dog RIGHT NOW for a nap. I did manage to get some stuff done today, but basically, this day is gonna be kind of a do-over.
I will respond more cogently-- hopefully-- to everyone tomorrow!
--Cat
It is very smokey here still. I was supposed to go to rheumy appt, but due to not feeling well and smoke (I have asthma) I rescheduled. They are telling people to stay inside, air is very unhealthy.
So, I'm taking it easy and staying inside, lol!