MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Hi everybody!
Thought I would start a new roll call. The other was getting pretty lengthy! Looking forward to 4th of July fun tomorrow! All the kids are coming in. Guess I will make food! The town activities are reving up. It is so nice to live downtown and right in the middle of everything! We just walk across the street and then walk home when we are ready. No parking woes or driving issues! And , although we live so close to everything, we have 2 acres of trees and grass and it feels like we are in a park!
My feet and knees and back are really hurting. I think I need to go back to the Dr. Will try next week. My ears hurt, glands in my neck are swollen and I am soooooooo tired. The mouth sores are pretty much gone. Also had some stomach upset last week but that is gone now. Urine smells bad too. Guess another UTI is brewing. Had one 3 weeks ago and I dont think the antibiotic worked.
The heat wave broke. It has been about 81 with low humidity and a nice breeze. The mosquitoes are less right now too. So nice!
Hope everyone has a nice weekend.
Mary Ann
Thought I would start a new roll call. The other was getting pretty lengthy! Looking forward to 4th of July fun tomorrow! All the kids are coming in. Guess I will make food! The town activities are reving up. It is so nice to live downtown and right in the middle of everything! We just walk across the street and then walk home when we are ready. No parking woes or driving issues! And , although we live so close to everything, we have 2 acres of trees and grass and it feels like we are in a park!
My feet and knees and back are really hurting. I think I need to go back to the Dr. Will try next week. My ears hurt, glands in my neck are swollen and I am soooooooo tired. The mouth sores are pretty much gone. Also had some stomach upset last week but that is gone now. Urine smells bad too. Guess another UTI is brewing. Had one 3 weeks ago and I dont think the antibiotic worked.
The heat wave broke. It has been about 81 with low humidity and a nice breeze. The mosquitoes are less right now too. So nice!
Hope everyone has a nice weekend.
Mary Ann
http://www.joost.com/082z69k/t/Rob-Thomas-Her-Diamonds-Video#id=082z69k
Enjoy!!
~hugs~
want2bepainfree
stay well and safe ladies.
hugs,
paige
We had a very quiet time at a friend's house with the dogs. Lots of big bangs, but the canines were cool and new the drill... other neighbors were cruising the block looking for lost pets.
MT, that sounds like a great neighborhood! Ours is similar, but we do have to roll down the hill a half mile first in our cars. Then, we can hit the supermarket, some used book and record stores, etc.
Paige, do get that chest listened to! Chest pain when inhaling is a major sign for pericarditis, but it is hard to hear. Ask the doctor-- preferably a cardiologist-- "Have you ever heard a pericardial rub before?" If not, he may call in someone who has. It is not a big deal if treated promptly.
I am feeling a bit better... cut down on pain meds now that I can sleep eight and a half hours at night and take a couple of short naps. This, in turn, helps mental clarity-- would love to cut down a bit more. Yesterday was a lot of back and leg pain because I did lots of housework and yardwork and trudged up and down the stairs a lot. Brain fog is mild... I'm reading ahead in my schoolwork, and if I just read 20 or 30 pages at a time without distraction, my comprehension seems to be okay.
Dallas, sorry you are feeling blah. I know that, too... Want2be, I am so glad the Plaq is working!
Gotta crash, take care, y'all...
--Cat
Getting to know some of the words used..sorry,
I know from school what a roll-call is..but for group I'm left kind of wondering?
CrisD.
Well, just returned from the beach. Got one day it wasnt raining. Had a little fun with the boogie board. And a few scrapes on the sand as usual. And got a few sunburn spots in spite of my best efforts, but just spots. Sunblock missed or scraped off. Still haveing the hip pain. More mouth sores. But not too bad. No rash from the sun yet! Maybe I will get by this time. Havent had one in a few years, since I went on the Plaq and Medrol.
Will try to start an new roll call tomorrow!
Mary Ann