MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Good afternoon!! Where is everyone? I hope not feeling ill. It is hotter than heck here today so I'm staying inside with my doggies and taking it easy. It is my second MTX shot day (Wed.) so I feel puny anyway. I had a very stressful day yesterday and boy am I feeling it today in my shoulder and neck muscles. I must have been tensing them more than I thought, lol!!
Well, the 4th is almost here. What do you have planned? Our daughter and her new hubby have invited us over for a barbeque. The only problem is they don't have any air conditioning, only fans, so hopefully it won't be too hot for me. Sounds like fun though!
Ok, who is next?
Hugs,
PolarBear
Well, the 4th is almost here. What do you have planned? Our daughter and her new hubby have invited us over for a barbeque. The only problem is they don't have any air conditioning, only fans, so hopefully it won't be too hot for me. Sounds like fun though!
Ok, who is next?
Hugs,
PolarBear
my sibs all came up for a HUGE birthday party for our mom. she turned 70. it is the first time we have all been together in a year. it was great to see everyone.
i am just plain tired of feeling like this. i ache from head to toe and am still not sleeping. the weather has been not very cooperative lately, hot and humid and stormy every day.
i have another interview set up for monday, still waiting to hear from the other company.
no plans for the 4th.
ok, next....
PolarBear,My plans for the 4 th.....i'am going off my diet, Going to eat a grilled hot dog and make some of my famous potatoe salad.Sorry you neck is bothering you,i hate the stiff necks and pain.Hope you feel better.
Kristinmh;we are having the same weather here,
(WV)rain and high humidity everyday!!Hope you feel better.
Helper01;Sending you some positive thoughts,hugs,prayers and yes a gentle push.lol.A more positive state of mind WILL
come,in time.
Hugs and prayers to all,Lisa
For the fourth, Our town has an all day celebration downtown. I live a block away, so lots of people park on my property, use my restroom and eat at my house! So far, most are relatives and people we know, but I have had strange kids show up. Mostly friends of friends of my kids. We have lots of booths and I am working 3 booth for 1 hour at a time. They are in the shade. We buy the chicken dinners the Lions club cooks. But cook dinner for whoever is here. The grocery downtown stays open and sometimes we have to run down and get more food. I get to see lots of people and everyone is in a good mood. Sometimes I get too hot. It is supposed to be 90 on Friday.
help01- welcome to the site! I will give you one tip that seems to help us all. Stay out of the sun! It will make your symptoms worse.
Now, for the truth of the matter. This disease will change your life. And we all get tired of the rules. Yesterday, with sunblock, I was out in the sun for an hour pulling brush to the road. Today, my face is itching so much! And I sure didnt want to get out of bed today. The face rash is not so bad, guess I dint stay out long enough, but the itching is bad and I feel the bumps under the skin. It was a heavy make up day at work. Mimi, here I come!
For the fourth, Our town has an all day celebration downtown. I live a block away, so lots of people park on my property, use my restroom and eat at my house! So far, most are relatives and people we know, but I have had strange kids show up. Mostly friends of friends of my kids. We have lots of booths and I am working 3 booth for 1 hour at a time. They are in the shade. We buy the chicken dinners the Lions club cooks. But cook dinner for whoever is here. The grocery downtown stays open and sometimes we have to run down and get more food. I get to see lots of people and everyone is in a good mood. Sometimes I get too hot. It is supposed to be 90 on Friday.
help01- welcome to the site! I will give you one tip that seems to help us all. Stay out of the sun! It will make your symptoms worse.
Now, for the truth of the matter. This disease will change your life. And we all get tired of the rules. Yesterday, with sunblock, I was out in the sun for an hour pulling brush to the road. Today, my face is itching so much! And I sure didnt want to get out of bed today. The face rash is not so bad, guess I dint stay out long enough, but the itching is bad and I feel the bumps under the skin. It was a heavy make up day at work. Mimi, here I come!