MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Hi everybody! Hope you are all well!
Christmas is a comin! As we say in the south.
Was down to 28 degrees F this AM. That is cold for here!
I have no tree up, no presents wrapped, and only a few purchased. My daughter and her spouse are here from Florida and decided to have friends in for dinner! Guess we wont put the tree up tonight either!
We have a High School band concert tomorrow night and I work at the Clothing Closet tomorrow morning. Had the Christmas party for my patients today. It was fun but tiring. About 180 in attendance.
Went to the Rheumy yesterday. She wants me to decrease the Medrol. I told her about the heart trouble. She says people with Lupus can develop cardiomyopathy but people with MCTD do not, so my probem is not caused by the autoimmune disease and see you in 5 months! And I liked her! Not so much now. I told her I was tired of being sick with no answers. And tired of going from Dr to Dr with no help. Then I left. I did make an appointment for 5 months and got blood drawn for vitamin D level. Maybe when I go back, She will be in a different mood. She does have a problem with this sometimes.
In the meantime, I plan to have a good Christmas and New Years. I get a heart monitor that works on Friday. A long time for an overnight delivery!
Mary Ann
Christmas is a comin! As we say in the south.
Was down to 28 degrees F this AM. That is cold for here!
I have no tree up, no presents wrapped, and only a few purchased. My daughter and her spouse are here from Florida and decided to have friends in for dinner! Guess we wont put the tree up tonight either!
We have a High School band concert tomorrow night and I work at the Clothing Closet tomorrow morning. Had the Christmas party for my patients today. It was fun but tiring. About 180 in attendance.
Went to the Rheumy yesterday. She wants me to decrease the Medrol. I told her about the heart trouble. She says people with Lupus can develop cardiomyopathy but people with MCTD do not, so my probem is not caused by the autoimmune disease and see you in 5 months! And I liked her! Not so much now. I told her I was tired of being sick with no answers. And tired of going from Dr to Dr with no help. Then I left. I did make an appointment for 5 months and got blood drawn for vitamin D level. Maybe when I go back, She will be in a different mood. She does have a problem with this sometimes.
In the meantime, I plan to have a good Christmas and New Years. I get a heart monitor that works on Friday. A long time for an overnight delivery!
Mary Ann
Hey M...you are still having trouble with your neck and shoulders...there must be something you can do to alleviate that...do you have any muscle relaxants? I take robaxicet for mine...but it doesnt always work...I have to use a magic heating bag and take warm baths in sea salt and epsome salts and then wrap up in a warm shawl and scarves...even in the house!!! I hope that you get some relief soon!!!!!!
~Donna