Great Day!!!!!

Ah! I was rambling on my own post and you early birds beat me to it!

Good morning everyone my husband is on computer all week taking a class. I am going swimming today with kids and grandkids. Now that I have MCTD I am so glad I had my three older kids so I can enjoy my grand kids still. Some pain today. Chloe I read your other post all I can say is you take back what you can. Do what you are able and chose what makes you feel good. I am glad in a way I did not know in my 20s what I had. Goodluck and keep your chin up. Have a good day all Jamie

Good morning!!!

Feeling great. Only did about 40 minutes on the ellip last night. I was just pooped! Got a good workout in thought. That's what I get for being addicted to exercise...I guess it's better than some of the other things I could be addicted to:)

I have a sleep study tonight...*insert pouty face*. Not until around 8:30. Hubby thinks it's hysterical...yeah...real funny:(

Anyway...having a good day so far. Hope you guys have a relatively pain free day:) I'm always sending best wishes your way!!

Nikkie

have a good day all. Workn, good luck with the sleep study. I had one about 5 years ago and it identified I had sleep apnea (stopped breathing about 102 times an hour) I got a CPAP and that helped a lot, however they recently sent me in for another one (before MCTD diagnosis) to try to figure out why I was sooo tired. It came back that I was sleeping fine, and that wasn't the reason I was tired. Although I am still not sure why they call them a sleep study. I think they should call them nap studies, since you can never really sleep for long periods of time with all those electrodes, etc stuck to you. But good luck and I hope it helps you to learn something. Everyone else, here is wishing you a painfree day.

Good morning everyone! Had a rough day yesterday but hoping today will be better. Got my walk in very early as it is going to be a hot one today! Cat. My normal temp runs at 96.4. Yesterday it was 100.4 so felt really bad and pain all over.Wow cups and saucers flying around eh. That hasn't happened to me yet. Hi Chloe. Commented on your other post. Maryann Hope you have a greaty day todaY! Hi Jamie. Hope the pain eases and enjoy that swim today and the kiddies.work. Good on the exercise! I could never do that much. lol. Hope the sleep study goes well tonight. . Hugs to everyone! Marilyn

good morning, all. Just wanted to say hello. Hope everyone is feeling ok today. Jamie - have fun swimming!! Worknp --good luck with the sleep study. Dallas - is that your kitty? Too cute!! Are you going for glasses today? I think so - hope it all goes well. Cat - hope you are on the upswing and feeling good today.
Hugs to everyone. Sending wishes to all for a good day --
Marianne

Cat --just read your post from yesterday - sounds like you are feeling better - glad to hear it. Very cool that you are attended the meeting the community response team for the fires. I am not sure where I have been, but I hadn't heard about the arson incidents this year. Fires at Griffith Park last year were pretty awful. Fires came really close to us last year as well - being new to CA it was the first time we dealt with anything like that and it was all pretty scary. As for our location - we are in the Santa Clarita Valley -just past the San Fernando Valley. Not quite as far as Lancaster/Palmdale, but in the direction. I would say Lancaster is about.....30-40 miles further, I think??? (I rarely drive that up that way!) -- Ahhh...the Mojave -- sooo pretty!! We drove up to Mammath Lakes this past winter and drove though the Mojave desert for the first time -- it was so beautiful!! The colors were amazing. Again, we're new here - grew up on east coast -- no deserts there!! We just loved driving through there -- we were in awe!!!
Anyway, have a good day. Hope you are feeling good today.

Hey, y'all,

Dallas, interesting about the low temps, I was rounding mind up a bit, mine is actually 96.8. I have asked about this and been told it has no significance-- but this is exactly the kind of thing I'd like to document and study a bit further. The most widest range possible for normal body temperature I've seen is 97 to 100, so I doubt our low temperatures are unimportant. (It's always made me feel like I'm clincally dead.)

Chloe, sorry there is no improvement. Is there any cycle to the flares at all? Does it go back and forth between better and worse? That's what I looked for, and I'd try to play the cycles... I got to a point where it was like, "Well, if I'm feeling lousy today and it's Wednesday, I know by a week from Friday I will probably be at least somewhat better, maybe I can buy those concert tickets." Then you try to push the remissions longer...

Trying not to spend too much time online today... Wrk and Odd, I do know sleep studies have helped a lot of people, even though people do make fun of them. (Z is reading over my shoulder and wants to start a sleep study right now, like, he'll sleep lying on my head for the rest of the afternoon. I have explained this is not very scientific!) Yes, I am on the upswing... I feel almost as achy when I first wake up, but it goes away more quickly, I'm up at 7:30 or 8:00 and by 10:00 I'm much better.

Best to all...

--Catalyzt

good afternoon all

i have been quietly sitting on the sidelines lately. i would have been very happy living under a rock, but then i think about it and realize then it would be damp and then i would feel lousy there too.lol.

i just had my third pt session today. my pain level was VERY low when i started and then, BAM, shot right up. i had tears rolling down my face. great, what else can happen.

came home to find out that my Disability claim is approved! YEAH.

then, my son found out two of his friends were in a very serious car accident.

I am not sure which emotion i will entertain this afternoon, but the swelling in my feet, the pain in my knees, and my back throbbing are arguing to see which one will win.

any way on to you guys, Chloe sorry for all that you are going through. Hope they find the right combo of meds for you and soon.

I would like to type more but nope not gonna happen today, maybe tomorrow.

kristin

Cat and help that desert sounds so nice. Makes me want to check it out. lol. Yes thats by baby girl. The majority of the time I swear she suffers from major pms! lol. But shes such a sweetie at other times. She picks on the boys who are twice her size and they just let her get away with it.Yes have three cats. So cat you are in the 96,s to eh! yes would be interesting to do a little survey on that! Oh Kristen sorry you have been sick. Yay on the disability eh!!!!!Lots of ups and downs. Glad you are back!!!! Hugs to all. Oh I almost forgot! No problem getting eyes checked today. yay!!!I think the eye drops did the trick!!!