MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
we haven't had a roll call in a few weeks, so I thought I'd start one today since Thanksgiving is coming up and a lot of us will be busy busy!
I am stressed out. Lots of stuff going on and not much of it having to do with the holidays. And, I am sure you all know what stress does to our bodies! Trying to get my dog spayed and the vets are trying to charge an insane amount of money for it...one even tried to tell me it would be $600. Sorry, you must be out of your friggin' mind! My son has been really tired lately, so we're trying to figure out what is going on with him, waiting for the blood tests to come back hopefully today. My neighbors children are being little hooligans, but God forbid you say anything to her about it. She gets all mad and asks why everyone is ganging up on her children. I guess she doesn't get that if everyone in the neighborhood is telling you that your kids are being bad, maybe your kids are bad. They just lie to her and tell her that they didn't do whatever it is and blame other kids in the neighborhood. It sucks, because her and I were getting to be friends, but I don't even want to be around her anymore. She acts like such a martyr all the time, I'm really sick of it. We are going to be travelling tonight to go visit our family for Thanksgiving. It will be nice to see everyone, but it will be a long drive. We're going to do it at night so there won't be as much traffic and the kids can sleep through it. Hope everyone has a wonderful Thanksgiving!
-Kate
I am stressed out. Lots of stuff going on and not much of it having to do with the holidays. And, I am sure you all know what stress does to our bodies! Trying to get my dog spayed and the vets are trying to charge an insane amount of money for it...one even tried to tell me it would be $600. Sorry, you must be out of your friggin' mind! My son has been really tired lately, so we're trying to figure out what is going on with him, waiting for the blood tests to come back hopefully today. My neighbors children are being little hooligans, but God forbid you say anything to her about it. She gets all mad and asks why everyone is ganging up on her children. I guess she doesn't get that if everyone in the neighborhood is telling you that your kids are being bad, maybe your kids are bad. They just lie to her and tell her that they didn't do whatever it is and blame other kids in the neighborhood. It sucks, because her and I were getting to be friends, but I don't even want to be around her anymore. She acts like such a martyr all the time, I'm really sick of it. We are going to be travelling tonight to go visit our family for Thanksgiving. It will be nice to see everyone, but it will be a long drive. We're going to do it at night so there won't be as much traffic and the kids can sleep through it. Hope everyone has a wonderful Thanksgiving!
-Kate
First id like to thank everyone who has tried to help. Your a small but good group. Much larger and I wouldn't be able to keep up. Holidays, yeah. I'm all bizz normally here but here's some personal. Just ended mitigation over my fathers Death in a hospital covered in ants on 3 occasions. It happened over 2 years ago and was slightly stressful. My wife's sister has recently started having joint problems, maybe she'll join the RA group. My attitude is poor to say the least. But you've all proven to be a bright spot in some dim days.
Leanne :(
Fasting blood work tomorrow.....I hate that!
My last art class tomorrow night....was a lot of fun, but I have no talent....lol
CT scan in two weeks, checking to see if I am having some sort of seizure activity.....??? What next!
Number one Daughter is coming home this weekend.....yea!
I hope everyone had a great Thanksgiving!
Hugs to all
Beth
My husband fail climbing over a bar a cade put up to keep grandkids living with us right now....he forgot how to lift his legg with long pants (Jeans) on and he is use to wearing shorts all the time out here in AZ.
So down he went and broke a few bones and he is a mess with pain and there isn't anything they can do for his ribs he was telling me.
this went on all while I was in hospital. I went in on a thrusday got out on Sunday....they said several things...first they kept running up to the floor I was on with the EKG machine...but couldn't find anything wrong nothing wrong with blood work....I think I must be dreaming all of this then? Or the blood pressure thing is wrong?
It is weird is all I know.
I had someting one of the nurses told me....they did see werid rare Q waves on the EKG so not everything was normal as they said...???
Still ....I kept having dizzy spells and couldn't see one thing but three things sometimes...weird again...that went away too.
So thanks giving my kids I have 5 grown ones....and they all have 15 grandkids for me....so most of them are boys they all decided to go to the waves side of the family....which in a way was a good idea since I was just out of the hospital week before thanksgiving...or there abouts.
I have weird things with med's (pills) going on...I saw a couple of my doctos last week or this week...whatever...I am in a lost feeling which day it is lately with all the stuff going on health wize...hard to know right now.
I just hate being ill....and not feeling like myself....and now the holidays...I love shopping...so no matter how bad I am I get out there...weird huh...oh well I found christmas was alive and kicking people helping others including me....so I saw first hand how nice most people are and helpful too.
God Bless each of them.
As for everything else...I feeling so tired lately,, so weak....I almost can't move...I think it is some new pill to help with chest pains causing this? I guess i will stop them...I just hate feeling so weak.
My heart rate drop to 45 and 49 under 50 and then would creap up to normal....I been testing now at home didn't catch it too low at home?
My doctor GP said to me and my husband that diabetes although I was just told I had it...can go and become daibetes 1 from 2??? that is weird I never heard of that before...and I might be going from diabetes 2 to 1???? who knew.
I hope it just predisone playing with me....and I'll be better hopely soon.
I sorry for the dog I read above.....dogs and cats can cost a arm and leg when it comes to vet bills....been there done that myself with our dogs.
best with that...
I need to re read all the post...so if you didn't get this far I understand...I wrote off my cluf and should of waited...but if I wait maybe I wouldn't write anything.
I can't sleep and I am up so this is some type of helping me to write.
thank you all
wishing you happy holidays and a much better new year..hope you get the Med's you need, help and what ever you wish.
hugs
bee
Had a good Thanksgiving for the most part. All my kids, their spouses and my grandson are here.
We had a friend over in the middle of this. It was fun. He brought some locally made Pineapple Mead. It was good so I actually had a cup. Been having trouble with my reflux since!!LOL! I pay for my sins! LOL!
My daughter works at the Chocolate Factory in Knoxville. We took the 5 year old grandson on a tour. His eyes were wide open and his mouth was hanging. They let him put a carmel and nut inside in the cholcolate coating machine (they call it the Lucy machine like on I Love Lucy) and he made a chocolate bear. He was so excited!
Something weird is happening with my legs. They are feeling weak and when I move them, they hurt like I have been bicycling up hill for hours. Then the pain passes. Might be my back but, has any of you ever had this happen?
I wish you would all start feeling better.
Sorry, gotta go help a guy get a tick off! Ha!
Mary Ann
Shame things have not since. Most of the details of my weekend are in my journal too long to rewrite here.
Sorry to hear the disability in the us is still no coming through for the guys
Glad to hear you all had good Thanksgiving, my daughter was over in Seattle with friends for her first Thanksgiving. She enjoyed pumkin pie and delighted to have Amercian Apple pie plus a few more from the sounds of it, she mentioned that she might have gained a few pounds ;) she even enjoyed black friday shopping.
Dispite being in hospital minus a hickman line fighting for my meds and at one point having a tempature of 41
I am fine so with a cough cough and a hackhack froma body determin it is going to have the last word i will say good night
TIGGY
My colonoscopy did not work, even though they put me out completely with propofol. Twisted / redundant colon. No return of blood in stools, so who knows what that was.
For me, all of that meant losing two full days from last week, just barely catching up now. The fasting really killed me. Feeling okay now, though, working 8-9 hour days three times a week, maybe another half day, wearing me out a bit but I can handle it. Need more exercise.
More soon,
--Cat