MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
MT i am concerned about lymes disease, please get it checked....
i have been under the weather. i am starting pt today. Humira tomorrow. big week for me.
There has been so much going on with all of you, i can hardly keep up. the other night i sliced one of my fingers so typing is tough right now. So what i would like to do, to minimize typing is say that i am thinking of all of you, hoping for a manageable day for all...
Kristin
We're a little off with the date...two roll calls for August 5th. Oh well, I totally understand the confusion...I can't believe it's August 6th already!!
We've had a ton of rain overnight but it is supposed to be clear this morning so I have arranged a tee off time and I plan to go golfing with my son. If the rain starts again, we'll just take a raincheck and try another day. :) Hope my joints cooperate!
I hope your day is painless and worry-free!
Jose
MT - My sister's kids (Arizona) start school today! I can't believe it either, but they do get done in May. I guess June is too hot for them. My kids start Sept. 2nd, but it's still sooner than I remember starting school. Good luck the the bug bite. My husband had some sort of bite on his back and we tried all kinds of creams, then an antifungal cream did the trick. Took a few weeks to completely go away.
Kristin - good luck with your finger and the meds.
Josee - let me know how the golfing goes! I'd love to golf, but am afraid I wouldn't be able to play enough holes to make it worth the money.
Andrew's birthday went well yesterday. Chuck E. Cheese's wasn't all that busy and they brightened it up a lot since I had been there last. My older boys commented on how they had doubled the arcade games and the play structure was half what it used to be. Oh, well. Andrew had a blast. My husband took him all around and played everything, while I sat with the pizza. :) I was still hobbling by evening when all the family arrived. Tried not to show it as much as I could, but there were some who I hadn't seen in a while. Thankfully they didn't ask or comment, but did help me out a little more.
Anyway, looks like I have a much slower day today with just a bible study with a friend this afternoon. Then I have my heart tests tomorrow. UGH! No caffiene! I can't survive without my coffee in the morning!
Hope you all have a wonderful day!
Kristin- Sure hope the PT helps. At times it has done wonders for me and not so much good at other times.
Yeah Josee- I really had no idea what today was! I do now. Wrote 10 checks for school fees! Free public education, my eye!
Matyanka- Glad the party went well. You are entitled to a slow day. Enjoy!
I have been feeling crummy the last couple of days, probably the weather and my MTX shots. Anyway, I'm hoping it will ease up so I can go to my high school reunion on Friday. I have such mixed emotions about going. For one, I have gained a LOT of weight while being on Prednisone, so I feel self-conscious about that. I keep telling myself that life is short and that shouldn't matter, but so far it isn't helping much, lol. The reunion is being held about 2 hours from here and I haven't travelled since last Sept. when we went there and I felt terrible the whole time. I haven't even shopped for something to wear, lol. I've gone to the 20th and 25th reunions and had a really good time on the 20th, but not so much for the 25th. Oh, well, I'll see how I'm feeling tomorrow, that's all I can do. If I decide to go, I'll have to go shopping! LOL!
I noticed you talking about bug bites and it caught my attention because my daughter keeps getting bit by something. She thought it was a spider that she eventually killed in her bedroom last week, but she has new ones and her husband isn't getting bit. These are leaving marks behind. She is getting bit even under her jeans. Strange.
Kristin - Good luck with everything. Sorry you haven't been feeling well. Hopefully the PT and Humira will help you.
Josee - Golfing sounds like a lot of fun! My son has been golfing with his friend all summer. I've never golfed, with the exception of miniature golf, lol!
Maty - We used to take our kids to Chuck E. Cheese. What fun!!! My hubby used to get up and play with the kids too while I guarded the pizza, lol! Good luck with your heart tests tomorrow. I'll keep you in my prayers.
MT - I'm with you on the "free" public schooling! Next to Christmas, that is one of the biggest expenses we had! LOL! We even had to buy Kleenex! Sheesh!
MT and Help01 - from a post a couple of days ago, yes, I am feeling a bit better now that the doc upped my pain meds and I started my antibiotic which has helped my tooth abcess pain, yay! I noticed, MT, that you said you may be starting Methotrexate? I am on it, if you have any questions, I'd be glad to help. :o)
Okay, I need to go let the dogs in and give them their treats. Have a Nice Day!!
Hugs,
PolarBear
Nightmares: Yes, been having very vivid dreams lately, many bad but last nights were good.
Bug bites: Yes, we have had lots of these, too-- strange ones can't figure out from what. A watchful eye needed, definitely.
Dates: Very funny, guys, particularly now that it's almost December! Going out to shop for a Thanksgiving turk... uh, squash (sorry, Josee). Boy, MCTD sure screws up your sense of time and direction, huh?
Finger cuts: I really worry about this, as I have been cutting up lots of cardboard boxes with a razor to put in the recycling bin. No accidents so far, but I HATE working with boxcutters! I make sure to work very slowly and carefully, always keep the blade pointed outwards, still drives me nuts, hope that heals quickly, Kirstin!
Matyanka, kudos for getting through the Chuck E. Cheese adventure! Polar, reunions are tough... your old friends will roll with it, I'm sure. At one of my reunions, an old friend abruptly dropped his shorts and whipped out a syringe (he had become a diabetic!) Freaked me out for all of about 30 seconds.
Feeling much better today, stomach and leg much improved, joints almost normal...
--Cat