MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
I have so much chronic pain, and my doctors told me its the hardest pain to treat because its the tendons that are inflamed causing the pain, and even though they are putting me on cellcept and increasing my prednisone, there is not alot of bloodflow to the tendons so it is hard to treat.
My right heel hurts so much I can not really put any weight on it, and there is no explanation or injury, just this disease, and I am actually dreaming of having it amputated , not that I would do it, but the pain alone just there never mind everywhere else affects my day to day life so much, just walking anywhere , the store, standing in the kitchen cooking, ect is just so painful,.
I am so overwhelmed, I have so many overlapping autoimmune diseases, and so depressed. I am getting help and have plenty of support, but how do you take all this chronic pain day after day, it just beats me down so much.
Anyone that can relate please say Hello, I could use someone who can relate with this awful disease. I also just got the confirmation that I do have autoimmune hepatitis, and I have sjogrens and SLE, but now the doctors say that this is really the proper DX for me, rather than just the Lupus, because I am affected everywhere, organs, muscles, just everywhere.
UGH
I hope everyone is having a wonderful day and I hope to hear from anyone willing to share with me.
thank you verybmuch,
Big Hugs!
Mary
My right heel hurts so much I can not really put any weight on it, and there is no explanation or injury, just this disease, and I am actually dreaming of having it amputated , not that I would do it, but the pain alone just there never mind everywhere else affects my day to day life so much, just walking anywhere , the store, standing in the kitchen cooking, ect is just so painful,.
I am so overwhelmed, I have so many overlapping autoimmune diseases, and so depressed. I am getting help and have plenty of support, but how do you take all this chronic pain day after day, it just beats me down so much.
Anyone that can relate please say Hello, I could use someone who can relate with this awful disease. I also just got the confirmation that I do have autoimmune hepatitis, and I have sjogrens and SLE, but now the doctors say that this is really the proper DX for me, rather than just the Lupus, because I am affected everywhere, organs, muscles, just everywhere.
UGH
I hope everyone is having a wonderful day and I hope to hear from anyone willing to share with me.
thank you verybmuch,
Big Hugs!
Mary
Welcome! Sounds like you have had it! I know about that foot pain. Had plantar fascitis. 2 years of treatment to get it under control. I think the inflammation is so difficult to deal with. Just keep up with the hope. Sometimes it is all thet keeps me going. Maybe tomorrow I will be better! But so hard.
I remember trying to Christmas shop one year with the foot pain! I would park by the door. For once, I was the one cruising the parking lot looking for the spot by the door. I knew what I wanted. Went in, got that and went home. No looking, shopping around, or changing my mind! So limiting.
So, welcome to our little group.
Mary Ann
Hugs
I am also on cellcept and prednisolone....i think when they kick in you will have better days. Sometimes i just have to take painkillers and sleep until the pain eases a little.
Its good that you have support.....
Is the any chance you could get a foot massage? it may help
Hugs x
hugs,
paige
Hugs to you all!