MCTD Support Group

Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...

614 Members

1,869 Posts

0 Online

ela1 03/07/2018

Hallo

I'm new to this group and have few questions. For last two years I had light symptoms of scleroderma, and last few months they become me stronger, I have pain in my hip joint's and lupus red spots on my face and sometimes all my skin and muscles are very over sensitive, but scleroderna seems to be a dominant disease. Last few months it got stronger I have gastrointestinal involvement with strong constipation reflux and big belly, and recently the disease seems to get into my lungs and heart they feel as if burning. I don't know if it I'd dangerous, I'm in USA as a tourist so don't have a proper health insurance. I'm not taking any medicine my next visit to rheumatologist is in July and I'm not sure if I can just ignore those symptoms.. Any advice

MToennis 03/09/2018

This is a hard one. All of this really points to a flare for sure. The possible lung issues are scary. Can you call your rheumy and get some advice? Maybe you can get the info you need. Seeing one in the states is very hard and general Drs arent always very good at seeing or knowing the best course with something so serious. Plus, with no insurance, it is going to be expensive. If you can get in touch and explain maybe that is the way to go. Good luck.
Mary Ann

ela1 03/09/2018

Thank you.
That's s brilliant idea. If it wouldn't be 1am in London now I would phone straight away, now the burning sensation is gone it was there for few days... I feel much better

Join the Conversation