MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
I flew to New York a week after 9/11 to be with my mom. I think I got to the city on 9/18 or 9/19, and was warned by my buddy on the upper East side not to go below Canal street. But I had friends in Tribeca who lived just inside the zone, and there was no way I wasn't gonna see them.
I remember ducking under the yellow tape just after the curfew to get in and visit them on 9/21/01... the cops just kind of looked the other way, it was pretty obvious I wasn't a disaster tourist or something. I know the date because after I saw my friend and his wife and kids, my friend and I went to Puffy's tavern, where we watched Mike Piazza's eighth inning home run to defeat the Atlanta Braves; everyone went completely nuts. That was one hell of a night.
So I didn't live through it, but I was there for part of the aftermath. And yes, I remember the smell. My mother always suspected the exposure to pesticides played a role in my MCTD, but to my knowledge there is not any conclusive proof of this. Also, it's interesting that three out of five people in the "C" line of our apartment in New York on the upper East Side, where I lived full time for 18 years and off and on for half a century, developed Parkinsons. We always wondered if being next to the incinerator had something to do with it.
Exposure to chemicals or something burning might play a role, and I've always wondered b/c Livin Right works with chemicals.
There's just no way to be sure, no way to know. My best guess is genetic predisposition plus some kind of an environmental insult, which probably could be one of many things. Wish I had more answers.
glass, windows, drinking glasses, etc....
I watch it all on tv what happen on 9/11 in NY, it was hard for us all ....but living there must been 3x's worse to live thur it. sorry for you all and everything still going on...such as the illnesses etc.
big hugs
-Kate
I remember big trucks in the 70s sparing chemicals on our laws.